Episodes

  • Episode 50: What happens when a clinical trial fails?

    Episode 50: What happens when a clinical trial fails?
    Apr 11 2025
    In the first episode of TSC Now in 2025, host Dan Klein tackles the challenging topic of what happens when a clinical trial fails and how failed clinical trials inform future research in tuberous sclerosis complex (TSC). Dan interviews Mary Kay Koenig, MD, Professor of Child Neurology and Associate Vice Chair for Clinical Research at … Continue reading Episode 50: What happens when a clinical trial fails? →
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    31 mins
  • Navigating Housing Options for Dependent Adults with TSC (sponsored by Nobelpharma America)

    Navigating Housing Options for Dependent Adults with TSC (sponsored by Nobelpharma America)
    Dec 24 2024
    In this episode of TSC Now host Dan Klein is joined by Bruce Hainan and Jim Kotsailidis from Nobelpharma America, LLC and Shelly Meitzler, TSC Alliance Director of Outreach and Support, and mom to Ashlin and Mason with TSC. Shelly shares her experience looking for housing for her eldest daughter Ashlin, a dependent adult with tuberous … Continue reading Navigating Housing Options for Dependent Adults with TSC (sponsored by Nobelpharma America) →
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    35 mins
  • Drug-Resistant and Undertreated Epilepsy (sponsored by LivaNova)

    Drug-Resistant and Undertreated Epilepsy (sponsored by LivaNova)
    Nov 27 2024
    In honor of National Epilepsy Awareness Month, TSC Now host Dan Klein is joined by Steven Wolf, MD, Director at the TSC Clinic Without Walls serving NYC, Westchester, Hudson Valley & Connecticut. Dr. Wolf also serves as the Director of Pediatric Epilepsy at Boston Children’s Health Physicians of New York and Connecticut. Dr. Wolf specializes … Continue reading Drug-Resistant and Undertreated Epilepsy (sponsored by LivaNova) →
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    16 mins
  • 50th Anniversary Spotlight – Shonnie Johnson

    50th Anniversary Spotlight – Shonnie Johnson
    Jun 27 2024
    2024 marks the 50th anniversary of the TSC Alliance, which was founded by four moms in Southern California in 1974. To celebrate the anniversary of the organization, throughout the year TSC Now will feature interviews with some of the people who helped shape this organization. In this episode host Dan Klein had the distinct pleasure … Continue reading 50th Anniversary Spotlight – Shonnie Johnson →
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    38 mins
  • Episode 49: Community Spotlight – Gloria Triebenbach

    Episode 49: Community Spotlight – Gloria Triebenbach
    Dec 29 2023
    In a final bonus episode in 2023, host Dan Klein connects with Gloria Triebenbach, Chair of the TSC Alliance of the Pacific Northwest and Step Forward to Cure TSC Walk Chair for the walk in Renton, Washington. Gloria describes herself as a mother of an adult daughter with TSC, honorary mother of a 2nd adult … Continue reading Episode 49: Community Spotlight – Gloria Triebenbach →
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    34 mins
  • Episode 48: Community Spotlight – Kristen Moore

    Episode 48: Community Spotlight – Kristen Moore
    Dec 26 2023
    In a bonus episode, host Dan Klein connects with Kristen Moore, Vice Chair of the TSC Alliance of the Carolinas and Step Forward to Cure TSC Walk Chair for the Carolinas Walk. Kristen and her husband, Douglas, moved to Charlotte in 2012 and welcomed their TSC Warrior Jackson to the world in 2019. Jackson was … Continue reading Episode 48: Community Spotlight – Kristen Moore →
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    28 mins
  • Episode 47: Closing the Epilepsy Treatment Gap Worldwide

    Episode 47: Closing the Epilepsy Treatment Gap Worldwide
    Dec 22 2023
    In this episode, host Dan Klein learns about Pretola Global Health and Consulting Limited and how they advocate for a better future for people living with epilepsy, learning disability and autism around the world. Earlier this year, the TSC Alliance partnered with Pretola on the 4th edition of the Epilepsy Assessment and Management Course, an … Continue reading Episode 47: Closing the Epilepsy Treatment Gap Worldwide →
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    32 mins
  • Episode 46: Understanding drug resistant epilepsy and treatment options

    Episode 46: Understanding drug resistant epilepsy and treatment options
    Oct 27 2023
    In this episode of TSC Now, host Dan Klein interviews Karen Keough, MD, a child neurologist at Child Neurology Consultants of Austin. Dr. Keough defines drug resistant epilepsy (DRE), explains how lack of seizure control can impact someone’s quality of life and shares some treatment options beyond medication, including surgery, dietary therapies and neuromodulation devices. … Continue reading Episode 46: Understanding drug resistant epilepsy and treatment options →
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    13 mins