Episodes

  • 50th Anniversary Spotlight – Shonnie Johnson

    50th Anniversary Spotlight – Shonnie Johnson
    Jun 27 2024
    2024 marks the 50th anniversary of the TSC Alliance, which was founded by four moms in Southern California in 1974. To celebrate the anniversary of the organization, throughout the year TSC Now will feature interviews with some of the people who helped shape this organization. In this episode host Dan Klein had the distinct pleasure … Continue reading 50th Anniversary Spotlight – Shonnie Johnson →
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    38 mins
  • Episode 49: Community Spotlight – Gloria Triebenbach

    Episode 49: Community Spotlight – Gloria Triebenbach
    Dec 29 2023
    In a final bonus episode in 2023, host Dan Klein connects with Gloria Triebenbach, Chair of the TSC Alliance of the Pacific Northwest and Step Forward to Cure TSC Walk Chair for the walk in Renton, Washington. Gloria describes herself as a mother of an adult daughter with TSC, honorary mother of a 2nd adult … Continue reading Episode 49: Community Spotlight – Gloria Triebenbach →
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    34 mins
  • Episode 48: Community Spotlight – Kristen Moore

    Episode 48: Community Spotlight – Kristen Moore
    Dec 26 2023
    In a bonus episode, host Dan Klein connects with Kristen Moore, Vice Chair of the TSC Alliance of the Carolinas and Step Forward to Cure TSC Walk Chair for the Carolinas Walk. Kristen and her husband, Douglas, moved to Charlotte in 2012 and welcomed their TSC Warrior Jackson to the world in 2019. Jackson was … Continue reading Episode 48: Community Spotlight – Kristen Moore →
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    28 mins
  • Episode 47: Closing the Epilepsy Treatment Gap Worldwide

    Episode 47: Closing the Epilepsy Treatment Gap Worldwide
    Dec 22 2023
    In this episode, host Dan Klein learns about Pretola Global Health and Consulting Limited and how they advocate for a better future for people living with epilepsy, learning disability and autism around the world. Earlier this year, the TSC Alliance partnered with Pretola on the 4th edition of the Epilepsy Assessment and Management Course, an … Continue reading Episode 47: Closing the Epilepsy Treatment Gap Worldwide →
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    32 mins
  • Episode 46: Understanding drug resistant epilepsy and treatment options

    Episode 46: Understanding drug resistant epilepsy and treatment options
    Oct 27 2023
    In this episode of TSC Now, host Dan Klein interviews Karen Keough, MD, a child neurologist at Child Neurology Consultants of Austin. Dr. Keough defines drug resistant epilepsy (DRE), explains how lack of seizure control can impact someone’s quality of life and shares some treatment options beyond medication, including surgery, dietary therapies and neuromodulation devices. … Continue reading Episode 46: Understanding drug resistant epilepsy and treatment options →
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    13 mins
  • Episode 45: The 2023 International TSC Research Conference

    Episode 45: The 2023 International TSC Research Conference
    Oct 19 2023
    On this episode of TSC Now, host Dan Klein recaps the 2023 International TSC Research Conference: Fueling the Future held September 7-9, 2023, in Washington, DC. The conference brought together over 200 researchers from around the world representing a wide array of specialties and the entire spectrum from basic science to clinical research. The comprehensive … Continue reading Episode 45: The 2023 International TSC Research Conference →
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    42 mins
  • Episode 44: Rare Conversations

    Episode 44: Rare Conversations
    Apr 20 2023
    Disclaimer: This episode is sponsored by Nobelpharma America LLC. The opinions expressed are those of the host and guest speaker individually and do not reflect the policies or positions of Nobelpharma. The following content is for informational purposes only. It is not medical advice and is not intended to recommend or suggest a course of … Continue reading Episode 44: Rare Conversations →
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    38 mins
  • Episode 43: The TSC-STEPS Trial

    Episode 43: The TSC-STEPS Trial
    Mar 15 2023
    In this episode of TSC Now, host Dan Klein dives deep on a new clinical trial in tuberous sclerosis complex (TSC) called TSC-STEPS. TSC-STEPS is a study to learn more about a drug known as Sirolimus and determine if it can prevent seizures and epilepsy in children diagnosed with TSC. The study is currently enrolling … Continue reading Episode 43: The TSC-STEPS Trial →
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    33 mins