Episodios

  • TSC Talks 3.0 Research~Episode 5
    Mar 25 2026
    In this episode I share information on the risks and side effects of CRISPR for individuals with TSC and in general as well as go into how those affected with TSC are "test bunnies" for much of this new technology, and my theories with documentation of why this is happening. I also go over some of the "no touch" technologies being rolled out and tested on those with diseases such as TSC where the nature of the genetics, a "monogenic" disorder, makes it a more suitable population to experiment on to gain information than other more common disorders, such as Alzheimer's, which involve 100s of genetic factors. TSC population is kept in that "test bunny" role without ever addressing the external factors that make the disease more difficult to manage in the first place.LINKS:pmc.ncbi.nlm.nih.govpubmed.ncbi.nlm.nih.govhttps://pmc.ncbi.nlm.nih.gov/articles/PMC7672342/https://cdmrp.health.mil/tscrp/defaulthttp://tuberous-sclerosis.org/research/tsa-funded-research/https://www.mdpi.com/2075-1729/15/3/368https://www.tscalliance.org/wp-content/uploads/2023/02/Training-Packet-Documents.pdfhttps://pmc.ncbi.nlm.nih.gov/articles/PMC3010088/https://pmc.ncbi.nlm.nih.gov/articles/PMC4527140/https://pubmed.ncbi.nlm.nih.gov/19028034/https://pmc.ncbi.nlm.nih.gov/articles/PMC6851053/https://www.youtube.com/watch?v=hXRRq-dFuYghttps://www.youtube.com/watch?v=Hu2TvhhdEHYhttps://www.youtube.com/watch?v=BFuXttZspaYhttps://pmc.ncbi.nlm.nih.gov/articles/PMC5727703/https://globalgenes.org/raredaily/transforming-tsc-epilepsy-with-a-precision-therapy/https://pediatricsnationwide.org/2024/01/11/innovative-gene-therapy-approach-for-treating-patients-with-tuberous-sclerosis-type-2/https://pmc.ncbi.nlm.nih.gov/articles/PMC3164024/https://pmc.ncbi.nlm.nih.gov/articles/PMC11944049/https://www.biorxiv.org/content/10.1101/2024.02.22.581652v1.full-texthttps://pmc.ncbi.nlm.nih.gov/articles/PMC6408922/https://www.mdpi.com/2076-3417/14/3/1132https://pmc.ncbi.nlm.nih.gov/articles/PMC3744999/https://www.researchgate.net/publication/24217930_Magnetically_Responsive_Nanoparticles_for_Drug_Delivery_Applications_Using_Low_Magnetic_Field_Strengthshttps://pmc.ncbi.nlm.nih.gov/articles/PMC2933363/https://pmc.ncbi.nlm.nih.gov/articles/PMC7998448/https://pmc.ncbi.nlm.nih.gov/articles/PMC9230665/Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
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    29 m
  • TSC Talks 3.0 Research~Episode 4
    Mar 18 2026
    TSC Talks 3.0 Research, Episode 4Here's my ongoing convo with AI delving into the funding behind rare disease research, non profits and how there are vested interests in continuing to bypass the full range of knowledge about what impacts the genome such as environmental (vaccines included) amplifications so they can justify the need for gene therapy via crispr, etchttps://rarediseases.org/about-us/financials-governance/https://rarediseases.org/collection/nord-financials/https://rarediseases.org/nord-releases-report-on-the-state-of-rare-disease-diagnosis-care-and-treatment-in-america-over-three-decades/https://rarediseases.org/nord-state-report-card/rarediseases.orghttps://rarediseases.org/wp-content/uploads/2022/10/NORD_2020_Annual-Report_wFinancials.pdfhttps://rarediseases.org/wp-content/uploads/2022/01/NORD_2020_Annual-Report_FINAL_SpreadView_web.pdfhttps://rarediseases.org/wp-content/uploads/2022/10/NRD-1198-2019_Annual-Report_FNL_WebSize.pdfhttps://www.eurordis.org/who-we-are/our-funding/https://www.eurordis.org/who-we-are/projects-and-partnerships/https://www.eurordis.org/partnerships/https://www.eurordis.org/get-involved/join-the-eurordis-round-table-of-companies/https://www.eurordis.org/publications/eurordis-policy-on-financial-support-by-commercial-companies-2/https://www.eurordis.org/our-priorities/research/https://www.eurordis.org/eurordis-supports-member-states-efforts-operating-grants-reintroduction/https://www.eurordis.org/videos/rare-but-real-talking-rare-diseases-part-1-6/download2.eurordis.orgvzacna-onemocneni.czhttps://everylifefoundation.org/rare-hub/rare-hub-partners-current-1-3/https://everylifefoundation.org/financial-support/https://everylifefoundation.org/everylifeeveryaction/https://everylifefoundation.org/sitemap/https://everylifefoundation.org/wp-content/uploads/2025/08/ELF-AnnualReport-2024-8.5x11-Proof-v6-081225.pdfhttps://everylifefoundation.org/wp-content/uploads/2022/01/Guide-to-Patient-Involvement-FINAL-COMPLETE-GUIDE-Rev.pdfhttps://everylifefoundation.org/wp-content/uploads/2016/05/Industry-Brochure-FINAL-May-2016.pdfBecome a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
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    30 m
  • TSC Talks 3.0 Research~Episode 3
    Mar 14 2026
    Episode 3 of TSC Talks 3.0 ResearchI drill down with the AI on the reality of what is happening in the rare disease expanse. The full expanse it's not explored we are jumping right into gene editing, like using whiteout, it isn't quite the same. It's a closed loop system. That is for sure. links:https://www.ninds.nih.gov/health-information/disorders/tuberous-sclerosis-complex#https://pmc.ncbi.nlm.nih.gov/articles/PMC7672342/https://www.ncbi.nlm.nih.gov/books/NBK1220/#https://patienteducation.asgct.org/understanding-cell-gene-therapy/ethical-issues-germline-gene-editing# https://pmc.ncbi.nlm.nih.gov/articles/PMC12103018/# https://pubmed.ncbi.nlm.nih.gov/6873497/#https://pmc.ncbi.nlm.nih.gov/articles/PMC6277505/# https://www.researchgate.net/publication/326455213_Incidence_of_tuberous_sclerosis_and_age_at_first_diagnosis_new_data_and_emerging_trends_from_a_national_prospective_surveillance_studyhttps://pmc.ncbi.nlm.nih.gov/articles/PMC11944049/# https://www.slu.edu/law/health/blog/2024/vence-bonham-dss.php#https://tuberoussclerosiscenter.wustl.edu/about-tsc/causes/# https://www.ncbi.nlm.nih.gov/books/NBK535878/# https://pmc.ncbi.nlm.nih.gov/articles/PMC5524257/#https://pmc.ncbi.nlm.nih.gov/articles/PMC5100696/#https://link.springer.com/article/10.1007/s11569-025-00479-8# https://www.ncbi.nlm.nih.gov/books/NBK535877/# https://pmc.ncbi.nlm.nih.gov/articles/PMC11306935/# https://pmc.ncbi.nlm.nih.gov/articles/PMC10338708/https://www.thehastingscenter.org/genetic-therapies-for-rare-diseases-developing-ethical-regulatory-policies/# https://med.nyu.edu/departments-institutes/population-health/divisions-sections-centers/medical-ethics/education/high-school-bioethics-project/learning-scenarios/jesse-gelsinger-casehttps://www.cliffsnotes.com/cliffs-questions/5224266# https://www.bstquarterly.com/article/using-synthetic-biology-to-create-therapeutic-solutions/# https://www.sciencedirect.com/science/article/pii/S1359644621001574 https://www.sciencedirect.com/science/article/abs/pii/S1359644621001574##raredisease #TuberousSclerosisComplex #GeneEditingBecome a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
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    24 m
  • TSC Talks 3.0 Research, Episode 2
    Mar 3 2026
    ​Episode 2 of ongoing research on Tuberous Sclerosis Complex based on the query~Is CRISPR CAS9 being researched to help/cure tuberous sclerosis?"
    An exchange with Google AI mode in reference to the above query with the intention of making it clear the trajectory for those with rare diseases in terms of overriding our biological organic template and moving towards a more synthetic version. I picked up where I left off with Episode 1 and talk through Epigenetic "Switches", Gut-Brain Axis and Neuroinflammation, Why Researchers Are Skipping These Links, Potential Reasons for the Research Focus, Funding and Corporate Partnerships, Neuroinflammation Research, The "TAND" Project (TSC-Associated Neuropsychiatric Disorders), The PREVENT Trial, Basic Science and "Somatic Mosaicism", The "Funding Gap" regarding Conflicts of Interest, The Logic of the "Omission", Lived Experience vs. "Proven" Science,Why It Feels "Diabolical" & Finding the "Clean" Data https://www.mdpi.com/1422-0067/22/14/7273 https://pmc.ncbi.nlm.nih.gov/articles/PMC11275973/ https://www.ncbi.nlm.nih.gov/books/NBK206940/ https://www.nature.com/articles/s41398-024-02752-y https://clinicaltrials.gov/study/NCT01289912 https://pmc.ncbi.nlm.nih.gov/articles/PMC9253752/ https://www.intechopen.com/chapters/82669 https://pmc.ncbi.nlm.nih.gov/articles/PMC6748183/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6278824/ https://www.nature.com/articles/s41439-022-00181-1 https://pmc.ncbi.nlm.nih.gov/articles/PMC3035853/ https://pmc.ncbi.nlm.nih.gov/articles/PMC5804531/ https://pubmed.ncbi.nlm.nih.gov/40558831/ https://docs.google.com/document/d/1ncDHvfDHkzVd1-H4Xgulz-mhSZxhwhydK6jWln90L5E/ (contact pjlacy6@gmail.com for access)

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    24 m
  • TSC Talks 3.0 Research~Episode 1
    Mar 2 2026
    "Is CRISPR CAS9 being researched to help/cure tuberous sclerosis?" An exchange with Google AI mode in reference to the above query with the intention of making it clear the trajectory for those with rare diseases in terms of overriding our biological organic template and moving towards a more synthetic version. For many this will bring great relief as these rare diseases are challenging for affected and the ripple created in the realm. Instead of considering ALL the factors that have exacerbated and amplified rare diseases to the point of no return, our powers that be are forging ahead with gene therapy, at the germline. This disease is a data generator, and the affected population a perfect test template for gathering the intel needed , organ by organ to duplicate and integrate with the tech. No judgement, just sharing the conversation as I feel it's important to share these exchanges with the body of knowledge currently feeding the AI. https://youtu.be/lZKqFZWnp0c Here's a link to the queries. https://share.google/aimode/mwKaYPnKgzw54cs76












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    25 m
  • TSC Talks Revival!! JUSTIN LESLIE of Project Whistleblower ~ Truth Under Fire
    Mar 18 2024
    This is a special edition, TSC Talks Revival episode with Justin Leslie! Justin is an ex-Pfizer scientist and whistleblower. Justin was also one of my first guests on my podcast "TSC Talks" in 2018, (https://bit.ly/3Iz0FUU) where he shared his story about his experience with diagnosis and living with TSC.

    In "Project Whistleblower" Justin shares his personal journey, including living with Tuberous Sclerosis Complex (TSC), a condition that not only shaped his childhood but also inspired him to pursue a career in pharmacology, aiming to find a cure for his condition.

    During his time as a vaccine scientist at Pfizer, Justin began to collaborate undercover with Project Veritas. This partnership led to the revealing of mind blowing revelations about the COVID-19 ‘scamdemic’ and other alleged misconduct within Pfizer. However, he soon started to observe concerning behaviors within Project Veritas, such as the suppression of timely truths and vaccine concerns. These observations led him to question the integrity of the organization and its founder, James O’Keefe.

    In collaboration with Marty Leeds, Justin has produced the compelling documentary “Project Whistleblower.” This film delves into his experiences and his growing awareness of the covert tactics and manipulations at Pfizer, Project Veritas, and OMG Media Group. In an era rife with lies and deception, the documentary underscores the revolutionary act of truth-telling." (credit to Amanda Vollmer: https://yummy.doctor/video-list/advocates-for-truth-amandha-vollmer-adv-with-justin-leslie/)
    Contact info for Justin!
    Justin Leslie: https://justintegrity.net/
    Justin’s Linktree: https://linktr.ee/justinleslie
    Contact: justinleslie3@protonmail.com
    Donate to Justin's work: https://www.givesendgo.com/ProjectWhistleblower

    WATCH THE DOCUMENTARY HERE: https://justintegrity.net/project-whistleblower/
    Produced by: https://linktr.ee.com/jillwoodworth https://jillwoodworth.com

    Short clip produced by @jillwoodworth
    https://jillwoodworth.com

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    1 h y 46 m
  • TSC Talks! Final podcast~Wrapping it Up & Thanks
    Jun 23 2022
    Jill wraps up the podcast! I started in 2016 interviewing my kids and how they were affected by Tuberous Sclerosis Complex. It was absolutely divine inspiration from the start and branched out shortly after to interviewing community members and other professionals who worked with those affected. From there, I explored many different topics, providing information and resources in interview form, all with relevance to the individuas and/or parent/caregivers affected by a chronic illness like TSC. Pushing the boundaries of what was deemed "safe and effective" by our medical system, I continued to put info out there based on my own lived experience as a parent/caregiver living and dealing with what I'd come to discover is CPTSD if you want to use a label. It was my vision and still is that all "remedies" for improving the quality of life of all involved in the wheels of chronic illness, particularly one such as TSC which affects all the vital body organs, will be an option for all.

    Why should we hold back the river when there are so many speaking about how their lives have been impacted by sharing their truths, sharing what's worked for them and what potentially might help another ease the very real and almost daily traumas of attempting to live with an open heart and navigate our inverted systems of care.

    Many of these podcasts go against the grain of what people are comfortable hearing. There are always positive takeaways but there are some heavy heavy experiences that people are walking through and talking about and must be given voice. I think through honest conversation, and taking full responsibility for one's reactions to other's sharing from their most painful, heart-wrenching moments, we can begin to hear each other once again at least long enough to realize, we're all having vastly different experiences yet we all long to be here now, safe, loved, whole, home.

    Thanks for tuning in and being here there and everywhere. It's been the pleasure of a lifetime to have the opportunity to create and share this work.

    Love Jill

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    25 m
  • TSC Talks! Points of Light~Linsey Hurley~Holistic Health Coach Working with Cutting Edge Energy Healing Technologies "Silver Linings"
    Mar 28 2022
    I met Linsey Hurley this past December when we both participate in a Freedom Flash Mob dance event at a local mall. It was a fun and powerful event, a group of locals suddenly bursting into dance and raising awareness of our right to medical freedom! So, I figured the people I met at this event were pretty special. I got a text from Linsey a few weeks ago and we got to chatting. She told me a bit about her business and this new patch she had been guided to that was quite interesting. At that point, I decided to invite her on the podcast to discuss and was quite impressed with what I learned, and the potential of this new tool, X39 patches. Linsey is a holistic health coach, and she has worked with cutting-edge energy healing technologies for many years. She was led to the alternative health field after her experience witnessing her sister go through stage 4 breast cancer within the mainstream health system. Despite her and her sister doing much research and finding alternative treatments which when suggested, were basically brushed off and ignored. This was over 40 years ago. She ultimately lost her sister, and faith in our conventional system, which explains the silver lining. Her sister inspires her and is with her every day and she is grateful for her impact on her life, ultimately pushing Linsey into utilizing and sharing these amazing healing energy devices and tools today! The rest of this story is in the podcast. See timestamps from the transcript below. If interested in learning more, you can reach out to Linsey at linsey@newview.org by phone at 9787937291. For more information on the product~ https://startx39.com and if you would like to sample some, contact Jill Woodworth at pjlacy6@gmail.com or order at https://lifewave.com/jwoodworth Here are a few links with some scientific info~http://stemcellpatchresources.com/wp-content/uploads/2019/11/QA.pdf https://www.lifewave.com/Content/images/home/science/pdf/Photobiomodulation-or-low-level-laser-therapy.pdf https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6073405/https://newswire.net/newsroom/blog-post/00227659-the-science-behind-life-wave-s-wearable-phototherapy-technology.html https://theoptionsph.com/2021/01/10/lifewave-phototherapy-patches-too-good-to-be-true/ timestamps:1-2:18 Introduction2:18~Linsey’s story, holistic health coach…. started 40+ years ago when her sister was diagnosed with stage four breast cancer3:06~this experience w/her sister and watching her go through all the conventional treatments to no avail despite doing research w/her sister on alternative options, led her to not have much trust in our conventional medical system3:57~Again her experience with her sister led her to alternative health and deeper into spirituality to process this loss, which was over 40 years ago and she’s still here. She considers this a gift from her sister.5:36 the mainstream narrative keeps us in fear and subservience with no energy to consider why we are here5:57~Linsey’s sister is still with her6:32~Start of discussion on X39 patches which support the body’s natural systems7:23~the body is brilliant! We can support it in the way it wants to heal7:45~FDA glitch at beginning of the pandemic, Linsey could not use regular tools such as the Beamer and was led to X39 patches8:06~X39 patches are a frequency device that activates the body’s stem cells.8:37~A discussion of exactly what stem cell therapy is, what’s involved, the expense, often making it inaccessible and usually used as a last-ditch effort when all else has failed9:53~further explanation of the patch, non-transdermal, made of amino acids and salt crystals, activates different reactions In the body10:36~the science is putting frequencies on the skin that cause other reactions leading to doing some healing11:04~David Schmidt is a scientist who was hired by the Navy to develop a patch for Navy Seals to replace amphetamines12:02~Linsey uses a lot of patches now she has all her grandchildren living with her~more patches have been developed12:24~David Schmidt brought this technology to a friend who was a coach of UCLA swimming, he’s been developing and working on it ever since. Different patches are all based on the frequency13:15~X39 patch is the holy grail -activates GHK Copper Peptides that decline with age14:10~It’s just actually about age reversal, have had a 70-year-old test with the body of a 50-year-old15:00~Helps with all kinds of degenerative diseases, many testimonials, MS, Parkinson’s16:17~comparison of different frequency devices, AO Scan, Beamer, all are wonderful and if possible used right now to get through these times when we are bombarded with energies, 5G, EMF…17:20~Linsey had an autoimmune disorder, 15-20 years ago, had to quit her job, “3-year retreat”, trusted spirit, found Kangen water, another healing modality which was expensive but a good investment as she was able to heal.20:29~Our healthcare systems are frustrating, organ-based, siloed, going ...
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    28 m