Vitamin SC3

By: Sickle Cell Community Consortium
  • Summary

  • The Vitamin SC3 podcast is a new sickle cell-centered podcast. The podcast will share various sickle cell stories made up of 4 different segments: The Creative Elixir with Mia Robinson, Caring is Giving with Elle Cole, Essential RX hosted by Dr. Lametra Scott, and Self-care is Healthcare hosted by Dr. Marjorie Brewer. Each theme will give you more insights into the real lives of sickle cell Warriors and their families. You will learn why we are bonded by blood with shared life experiences. The information shared on the Vitamin SC3 Podcast is for informational or educational purposes only and does not substitute professional medical advice or consultations with healthcare professionals. The podcast is powered by the Sickle Cell Community Consortium, founded by Dr. Lakeia Bailey.
    © 2022 Sickle Cell Consortium. All Rights Reserved.
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Episodes
  • Breaking Sickle Silence, A Conversation with Author James Griffin III
    Dec 13 2022

    Finding your voice as a Sickle Cell Warrior

    James Griffin is a warrior and sickle cell advocate who lives in Wisconsin. In this episode, he spoke with Mia Robinson about his book "Breaking Silence."
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    Today's show is brought to you by the Creative Elixir segment with Mia Robinson. The Vitamin SC3 Podcast is powered by The Sickle Cell Community Consortium.

    About James Griffin III

    James Griffin was diagnosed with sickle cell at the age of two. He is a writer, speaker, sickle cell advocate and a published author. He is best known for his book Breaking Silence: Living With Sickle Cell Anemia. In 2012, he began advocating for sickle cell, and since then he has been
    using his voice to make an impact to change the lives of others. As a sickle cell advocate his goal is to improve the quality of care for patients within the medical systems around the world, and eliminate the stigmas and biases associated with this condition. James has spoken in front of healthcare professionals, future med students; including at one of the most prestigious institutions, Harvard University, pharmaceutical and biotech companies, patients, caregivers, and state legislators. Along with that he has been a feature on television, in health magazines, online in news articles, and other media outlets all centered around awareness for sickle cell. He was born in Milwaukee, Wisconsin and continues to support and build partnerships with sickle cell nonprofit organizations locally and nationally.


    Sickle Cell Warrior the breakdown of the conversation

    • The process of writing "Breaking Silence" (Timestamp 12:25)
    • Did writing the book help you process some of the emotions that come with living with sickle cell? (Timestamp 15:10)
    • What motivates you to continue to go on despite sickle cell issues that may come your way? (Timestamp 16:30)
    • It's good to be around positive people (Timestamp 18:20)
    • What are some of the things you do to stay healthy? (Timestamp 18:40)
    • Transition and comprehensive care in the Sickle Cell Community (Timestamp 23:00)

    Breaking Silence: Living With Sickle Cell Anemia
    (affiliate link, the Vitamin SC3 Podcast will receive a small commission when you use this link)

    Social Media Tags:

    Facebook: https://www.facebook.com/Jamesace21

    Email: JamesGriffin3@yahoo.com


    The next episode of the Vitamin SC3 Podcast drops on Monday!

    Please tune in next week for a new episode from the Creative Elixir!


    Do you Want to Become a Sickle Cell Consortium Partner?

    Click here to become a Sickle Cell Community Consortium member!

    Follow their Instagram and Facebook pages to learn more about the Sickle Cell Community Consortium.

    Please Subscribe.

    Help keep this podcast on air and help support the community projects that are making a difference in the sickle cell community. Please donate to the Sickle Cell Community Consortium at https://sicklecellconsortium.org/donate-to-sc3/

    Listen to the Vitamin SC3 Podcast using one of many popular podcasting apps or directories.



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    36 mins
  • Town Hall Recap at University of Maryland Capital Region Health
    Nov 21 2022
    The Sickle Cell Community Consortium powers the VitaminSC3 Podcast. Today's show is brought to you by the Caring is Giving segment with Elle Cole. Today's conversation introduces our audience to a new hospital in the PG County Maryland area. The University of Maryland Capital Region Health held a Town Hall Meeting about we had in Prince George's County Maryland.About University of Maryland Capital Region (UMCR)University of Maryland Capital Region Health is a not-for-profit healthcare system serving the citizens of Prince George's County and the surrounding area.The mission of the new hospital is to provide high-quality, accessible healthcare services in partnership with the community.Learn more about UM Capital Regional Health's history.From the Organizer , the University of Maryland Capital Region"There are myriad of disparities systemically ingrained in health institutions across the United States that have led to inexcusable and poor health outcomes for people living with sickle cell disease (SCD). The structural disparities in medicine experienced by people with SCD are most apparent when patients seek pain relief when they are in excruciating pain from vaso-occlusive episodes— patients are often labeled as drug-seeking and left to suffer. Other issues faced by the SCD community include the lack of resources for the transition from pediatric hematology to adult SCD care and social determinants of health that play a crucial role in disease management and health equity.The PATHS (Prioritizing Access To High-Quality Sickle Cell Care in Prince George's County) project, funded by Maryland's Community Health Resources Commission, is working towards addressing these problems by increasing adult SCD expert providers at the University of Maryland, Capital Region Health's (UM Capital) new infusion clinic to meet the needs of people with SCD in Prince George’s (PG) County. By increasing resources at Children's National (CN), the project also aims to help children ages 13 and older receive transition services. This meeting will be an opportunity for the community to hear updates on the progress of the project."Today's Topic: We discussed the Town Hall Meeting Held at University of Maryland Capital Region Health Here are the questions we chatted about during our discussion:Intro (Timestamp 02:05) 1. Why is sickle cell disease an important conversation in PG County? (Timestamp 3:21) 2. What do you think is unique about our area and the new hospital? (Timestamp 6:43) 3. As a caregiver, what excites you most about the hospital, grant, and that sickle cell is a focus regarding this new project. (Timestamp 21:23)4. What are your expectations regarding transition and sickle cell treatment in PG county? (Timestamp 26:00) 5. There were various speakers, were there any speakers or messages that really resonated with you? (Timestamp 32:00) Follow Rachael TaylorInstagram: @magayaki.madeUniversity of Maryland Capital Region of HealthFollow Elle ColeInstagram: @CleverlyChangingWebsite: https://CleverlyChanging.comTwitter: @CleverlyChanginFacebook: @CleverlyChangingDonate:Did you enjoy listening to this episode? If so, please consider donating to keep this podcast going. Donations are tax-deductible and are made to the Sickle Cell Community Consortium. The next episode of the Vitamin SC3 Podcast drops on MondayPlease tune in next week for a new episode we will hear from the segment Essential RX with Dr. Lametra Scott. Do you Want to Become a Sickle Cell Consortium Partner?Become a Sickle Cell Community Consortium member by clicking here to learn more.Follow their Instagram and Facebook pages to learn more about the Sickle Cell Community Consortium.
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    39 mins
  • To Vaccinate or Not, That is the Question
    Nov 16 2022

    Today's show is brought to you by the Essential RX segment with Dr. Lametra Scott. The Sickle Cell Community Consortium powers the VitaminSC3 Podcast.

    Dr. Lametra Scott and Lindsey Dayer are two board-certified pharmacists who discuss why people living with sickle cell disease should get vaccinated, and they dispel some vaccine myths that exist.

    About Lindsay Dayer

    Lindsey Dayer received her PharmD degree from the University of Arkansas for Medical. Sciences (UAMS) College of Pharmacy (COP) in Little Rock, AR. She completed a PGY1 pharmacy practice residency at the University Hospital in Little Rock in 2009 and obtained board certification in ambulatory care pharmacy in 2011.

    Dr. Dayer is an Associate Professor and Director of Health-System Rotations (IPPE and APPE) for the UAMS COP Experiential Program. She also develops ACPE-accredited continuing education programming for pharmacists and other health professionals. Additionally, she serves as the clinical pharmacist in the state’s only adult sickle cell disease clinic.

    On the local level, Dr. Dayer currently serves on the Arkansas Association of Health-System Pharmacists (AAHP) New Member, Student and Resident Council. She helps develop experiential education-related content for the AAHP annual seminar on a rotating basis. She is a faculty advisor for the Student Society of Health-System Pharmacists and serves on various other committees within the college.

    Nationally, Dr. Dayer is an active member of the American Association for Colleges of Pharmacy (AACP) and currently serves as a member of the Champion Advisory Committee. She’s served as a reviewer for the AACP New Investigator Award since 2018 and has done in the Experiential Education Section as an abstract reviewer. She recently served as the Chair and Immediate Past Chair for the AACP Pharmacy Practice Awards Committee.

    Before joining the experiential department at UAMS, Dr. Dayer’s professional experience includes a background in oncology and palliative care clinical pharmacy. Dr. Dayer’s areas of scholarship include clinical research on sickle cell disease and pain management, pharmacy education (specifically interprofessional education and objective structured clinical examinations), and experiential education (IPPE and APPE remediation and assessment).

    Antibiotics like penicillin and vaccines

    • Sickle cell patients and spleen complications, and why parents should give their child the proscribed antibiotics. (Timestamp 6:10)
    • Answers why there was an 84% decrease in pneumococcal infections (Timestamp 8:34)
    • Meningococcal vaccines, blood and bacterial infections. (Timestamp 13:30)
    • The bodies immune response (Timestamp 17:00)
    • Haemophilus Vaccines (Timestamp 17:59)
    • Flu vaccines and what benefits are given to patients (Timestamp 19:00)
    • Covid vaccines (Timestamp 25:22)
    • Dealing with the symptoms and after-effects of being vaccinated. (Timestamp 29:55)

    Quotable phrase:
    It takes 2 weeks to be fully immunized to be able to fight it off [after receiving the Covid vaccine]. - Lukhan Cooper

    Follow our host, Dr. Lametra Scott:

    • Website: Breaking The SSickle Cell Cycle Foundation
    • Instagram @brkthesscycle
    • Facebook brkthesscycle

    Donate:
    Did you enjoy listening to this episode? If so, please consider donating to keep this podcast going. Donations are tax-deductible and are made to the Sickle Cell Community Consortium.

    The next episode of the Vitamin SC3 Podcast drops on Monday

    Please tune in next week for a new episode we will hear from the segment Selfcare is Healthcare with Dr. Majorie Brewer.


    Do you Want to Become a Sickle Cell Consortium Partner?

    Become a Sickle Cell Community Consortium member by clicking here to learn more.

    Follow their Instagram and Facebook pages to learn more about the Sickle Cell Community Consortium.

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    42 mins

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