Episodes

  • Changing the plan in family planning with Alison Kukla & Preston Reilly
    Oct 1 2024

    Ready for the sweetest, most non-traditional love story? Alison Kukla and Preston Reilly share their Meet Cute, Zoom wedding, and when “family planning” doesn’t go as planned. These two should legit have their own Hallmark movie that rewrites the script for happy endings.

    Tune in to hear how this powerhouse couple is changing the narrative of managing epilepsy in marriage, careers, and support systems.

    Wanna win some funny epilepsy merch? Take this 90-second survey about rescue meds, include your email, and you're entered to win!

    https://www.surveymonkey.com/r/WTEF

    Thank you to our Community Partner Epilepsy Foundation of America and sponsors Neurelis and SK life science for making conversations like this possible.

    --- Support this podcast: https://podcasters.spotify.com/pod/show/wtefpodcast/support
    Show more Show less
    1 hr and 4 mins
  • Turning trauma into triumph with JenVon Cherry
    Sep 24 2024

    In this powerful episode, JenVon opens up about the raw realities of living with epilepsy, from the cognitive challenges and isolation to the struggles with depression, anxiety, and dating. She bravely shares her escape from an abusive relationship, highlighting the critical importance of self-care and a supportive network.

    As the founder of Epitome of Epilepsy, JenVon discusses the mission of her nonprofit and the power of creating a truly inclusive work environment. Tune in for an unfiltered look at resilience, hope, and the fight for a better life with epilepsy.

    Click here to register for the Jewels of Epilepsy Gala on 11/9/24!

    https://www.epitomeofepilepsy.org/event-details/jewels-of-epilepsy-gala-1

    Available on Spotify, Apple, YouTube, Amazon Music, and Audible!

    Thank you to our Community Partner Epilepsy Foundation of America and Sponsors SK life science and Neurelis for making conversations like this possible.

    --- Support this podcast: https://podcasters.spotify.com/pod/show/wtefpodcast/support
    Show more Show less
    44 mins
  • Calling all outsiders with Mark Slater
    Sep 17 2024

    Ever felt like an outsider, even within your own community? You’re not alone! After Mark Slater hid his epilepsy for years, becoming an advocate didn't erase that feeling. But then came a pivotal moment that changed everything—Mark realized he succeeds because of his epilepsy, not despite it. Now we’re teaming up to create a space where people with epilepsy can truly connect.


    Tune in for the exclusive on the Otherside Lounge—a sanctuary for Outsiders like us!


    Thank you to our Community Partner Epilepsy Foundation of America and sponsors SK life science and Neurelis for making conversations like this possible.

    --- Support this podcast: https://podcasters.spotify.com/pod/show/wtefpodcast/support
    Show more Show less
    49 mins
  • What the ef is a rescue med? with Dr. Danielle Becker
    Sep 10 2024

    Ever heard of a rescue med but not sure wtf it really means? Join Dr. Becker, a top epileptologist at Ohio State’s Comprehensive Epilepsy Center, as she explains rescue meds, how to use them, and how to talk to your doctor about them. And check out how Dr. Becker and her team are revolutionizing epilepsy treatment through cutting-edge research and compassionate care. Take this survey about rescue meds, enter your email, and you'll be entered to win epilepsy merch!

    https://www.surveymonkey.com/r/WTEF Thank you to our Community Partner Epilepsy Foundation of America and sponsors Neurelis and SK life science for making conversations like this possible.

    --- Support this podcast: https://podcasters.spotify.com/pod/show/wtefpodcast/support
    Show more Show less
    47 mins
  • Better Than the Bullies with Anna Rasque
    Sep 3 2024

    Growing up, Anna faced relentless bullying and doubt from both peers and teachers because of her seizures. But instead of letting the stigma define her, she transformed her pain into power. Now a Community Outreach Specialist for her local Epilepsy Foundation of Wisconsin, Anna is a source of inspiration 🌟 and support 🤝, ensuring that no one feels alone on their epilepsy journey.


    Tune in to hear how Anna flipped the script, owned her epilepsy, and became a beacon of hope (and hilarity). 💪


    Thank you to our Community Partner Epilepsy Foundation of America and Sponsors SK life science and Neurelis for making conversations like this possible.

    --- Support this podcast: https://podcasters.spotify.com/pod/show/wtefpodcast/support
    Show more Show less
    47 mins
  • Climbing the Corporate Ladder: Using stigma as stepping stones with Jessica Chappell
    Jun 18 2024

    Jessica Chappell started as a clerk for a local store and is now a business analyst for that same corporation. Despite facing discrimination for her epilepsy, she used it as fuel to climb higher. Dreams of being a cop were sidelined, and she now trains law enforcement on seizure safety. Tune in and hear how to turn haters into motivation.

    Available on: YouTube, Spotify, Apple, Amazon Music, & Audible (links in @whattheefpodcast bio)


    Thank you SK Life Science and Neurelis for being our stepping stones!


    Check out @strobealert for strobe light reviews of movies and TV!

    --- Support this podcast: https://podcasters.spotify.com/pod/show/wtefpodcast/support
    Show more Show less
    47 mins
  • How to Train a Service Dog: Turning adopted cuties into legal sidekicks with Matt Bonfiglio
    Jun 11 2024

    Meet the cutest guest ever, Bella! Her human, Matt Bonfiglio, tells us how he found her on Craigslist and realized she had the makings of a service dog. Seven years later, Bella is a pro at helping Matt manage his epilepsy and charming skeptics everywhere. Get ready for laughs, heartwarming moments, and tips on how you might turn a quirky rescue pup into your very own loyal sidekick. 🐕🎉 Available on: YouTube, Spotify, Apple, Amazon Music, & Audible Thank you SK Life Science and Neurelis for being the ulti-mutt supporters of this podcast! American Disabilities Act: Service animal info: https://www.ada.gov/resources/service-animals-2010-requirements/

    --- Support this podcast: https://podcasters.spotify.com/pod/show/wtefpodcast/support
    Show more Show less
    45 mins
  • Bear Hugs and Brainwaves: What's an infantile spasm? (and how to find support)
    Jun 4 2024

    Kate Kostolansky, founder of Char Bear Keeps Dancing, and Dr. Christina Briscoe, pediatric epilepsy fellow, share insights on infantile spasms and epilepsy, emphasizing the importance of advocacy and education. Their conversation highlights the need for more support and resources for affected families. Join the discussion on hope and self-care!

    Get a bear and book! Or donate them to a children's hospital!

    https://www.charbearkeepsdancing.com/

    Resources Kate and Chris mentioned for infantile spasms:

    Epilepsy Foundation of America

    https://www.epilepsy.com/

    Infantile Spasms Action Network https://infantilespasms.org/

    Pediatric Epilepsy Research Consortium (PERC) https://pediatricerc.com/


    Thank you Neurelis and SK life science for the bear hugs!

    What the EF podcast is also available on: YouTube, Spotify, Apple, Amazon Music, & Audible

    --- Support this podcast: https://podcasters.spotify.com/pod/show/wtefpodcast/support
    Show more Show less
    53 mins