Mostrando títulos en Personas con Discapacidades

I am not a poet. I'm just a so-called writer. I am half-blind. Visually impaired, if that makes more sense. These are my words. Words as smooth and creamy as milk chocolate wine. Words as clunky and misshapen as life itself. This is my story. This is VISION BENT. ~~~~~~~~~~~~~~~. John L. Harmon currently resides left of center in a quiet town in the state of Nebraska. When he's not writing or blogging, John is delivering bad news around town, soaking up the local library atmosphere, or relaxing with a cat on his lap. VISION BENT is his first book of poetry and his first book since becoming ...

When Abraham Verghese, a physician whose marriage is unraveling, relocates to El Paso, Texas, he hopes to make a fresh start as a staff member at the county hospital. There he meets David Smith, a medical student recovering from drug addiction, and the two men begin a tennis ritual that allows them to shed their inhibitions and find security in the sport they love and with each other. This friendship between doctor and intern grows increasingly rich and complex, more intimate than two men usually allow.

Blindness. A tough topic to discuss? Not anymore. In this groundbreaking book, listeners will see blindness in a whole new light. In fact, the compelling and entertaining stories will not only change perceptions of blindness, they’ll make listeners forget the people featured are actually blind.

The entire world knows Michael J. Fox as Marty McFly, the teenage sidekick of Doc Brown in Back to the Future; as Alex P. Keaton in Family Ties; as Mike Flaherty in Spin City; and through numerous other movie roles and guest appearances on shows such as The Good Wife and Curb Your Enthusiasm. Diagnosed at age 29, Michael is equally engaged in Parkinson’s advocacy work, raising global awareness of the disease and helping find a cure through The Michael J. Fox Foundation for Parkinson's Research, the world's leading nonprofit funder of PD science.

Russell Joyce was born with a rare craniofacial disorder called Goldenhar syndrome, where the left side of his face was not formed. Years of patchwork surgeries made him more outwardly presentable, but not without deep pain and physical and emotional scars. But a life-changing encounter broke through to him with a power he never thought possible, in the very place he never thought to look—his broken face. This set Russell on a journey to understand what was hindering him and others from experiencing the power of God's grace and being truly set free.

When an idealistic activist objects to her siblings’ plan to ship their disabled sister off to a nursing home, she’s forced to choose between family and her sister’s freedom. Franke immediately objected when she heard the plan to put her sister, Teresa, into a nursing home. Teresa herself, who was born with Down syndrome, refused to even consider the idea. She wanted to stay with her father. But none of this mattered to the other siblings, who were acting as Teresa’s “guardians.”

But You Look So Normal is the inspiring story of a life affected, but not defined, by an invisible disability. It is a journey through family, loss, shame, identity, love, and healing as Claudia finally, joyfully, finds her place in the world.

David Tatel has served nearly 30 years on America’s second highest court, the United States Court of Appeals for the D.C. Circuit, where many of our most crucial cases are resolved—or teed up for the Supreme Court. He has championed equal justice for his entire adult life; decided landmark environmental and voting cases; and embodied the ideal of what a great judge should be. Yet he has been blind for the past 50 of his 80-plus years.

Lucy Edwards is a UK-based blind broadcaster, content creator, Pantene Ambassador and disability activist. At only 17 her world went to black. In an instant Lucy lost her eyesight due to a rare condition called Incontinentia Pigmenti. She had to learn how to navigate her life all over again, the beginning of an extraordinary journey to find self-acceptance and happiness. Lucy took to the internet and started to upload her experiences. Through sharing her day-to-day routine in her viral 'How does a blind girl?' video series, Lucy's story gripped the nation.

Weeks after giving birth, Holly Frances went from being a healthy 26-year-old new mom to paralyzed and on life support—in less than 72 hours. Diagnosed with a rare autoimmune disorder called Guillain-Barre Syndrome, Holly was trapped in her body, unable to move, speak, or hold her newborn daughter. Life Support tells the story of how Holly struggled to overcome the despair, hopelessness and physical pain, to regain her health and get back to being a mother to her daughter.

Kevin’s life was forever changed on a random Wednesday when he was just 20 years old. An aspiring musician at the time, he was planning to attend music school and pursue his dream of becoming a composer. A stroke dismantled every plan and everything in his life. In Taken By Surprise, Kevin chronicles his battles with the stroke. After a risky brain surgery, he was in a coma for nearly a month and spent six weeks in an acute rehab facility to learn how to walk and talk all over again.

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits, an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes, had earned him the label "social deviant". No guidance came from his mother or his father. It was no wonder he gravitated to machines, which could, at least, be counted on.

One afternoon, Emma Nadler gets a call from her daughter's doctor that changes her life forever. Faced with the realities of raising a child with a rare genetic condition, Nadler must confront her preconceptions of motherhood and her perfectionistic beliefs. Nadler—who also happens to be a psychotherapist—offers a rare window into the unconventional ways she and her family adapt to their improbable path. Every relationship in her life—with herself, her husband, children, friends, and even clients—is reimagined as she navigates the heartbreak and hilarity of her daily life.

Sumérgete en la extraordinaria vida de Gerardo Schmedling, un hombre cuyo poder espiritual inquebrantable desafió las adversidades de la parálisis de Guillain-Barré en su juventud y las secuelas que afectaron su movilidad de por vida. Este relato, narrado por su prima María Mercedes Olivares Schmedling, conocida como Mechas, quien compartió con él desde su infancia, revela cómo Gerardo se convirtió en el arquitecto de un movimiento global de transformación personal y social.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

What would your life look like if you measured success by your improvements instead of your victories? Chris Nikic, the first person with Down syndrome to ever complete an IRONMAN® triathlon, inspires others to achieve their goals by getting one percent better better every day.

Inside My Outside: An Independent Mind in a Dependent Body provides an in-depth look into the life of a young woman with cerebral palsy who cannot walk or talk but who uses an electronic device for communication. This memoir covers three full days, from morning to night, in Sara Pyszka’s life, providing glimpses of past relationships, friendships, schooling, and outrageous stories about the challenges of hiring, firing, and working with personal care assistants.

While preparing to deploy with the US Army, Marcus suffered a severe spinal injury that left him paralyzed. After dying on the operating table twice, the surgeons saved his life, but told him he'd never walk again. Having no other option, Marcus started doing some brutally honest soul-searching, looking for the lesson to be learned from his injury. Once he started seeing his adversity as a gift instead of a curse, something miraculous began to happen....

The modern world is built for neurotypicals. Needless noise, bright flashing lights, small talk, implication and ‘unwritten rules’; it can be a nightmarish dystopia as far as the autistic population is concerned. In Untypical, Pete Wharmby lays bare the experience of being ‘different’, explaining with wit and warmth just how exhausting it is to fit into a world not designed for you.

This intimate memoir reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of 35, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, she exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but - more importantly - as a thoroughly modern woman.