Mostrando títulos en Personas con Discapacidades

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

Lissa Bachner was born with a passion for horses and won her first blue ribbon at age five. Other awards would follow as a young rider, and for years Lissa trained with jumpers, tackling more difficult leaps, and working to perfect her ride. When blindness struck in her teens, it appeared her passion for riding would come to an end. How could she jump hurdles when she could barely navigate through her own home? But success, trust, and love came to Lissa when her trainer convinced her to buy a "diamond in the rough" from Germany.

Divided Minds is a dual memoir of identical twins, one of whom faces a life sentence of schizophrenia and the other who becomes a psychiatrist after entering the spotlight that had for so long been focused on her sister.

What is intimacy? More than sex, more than romantic love, the pieces in this stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. Explorations of caregiving, community, access, and friendship offer us alternative ways of thinking about the connections we form with others—a vital reimagining in an era when forced physical distance is at times a necessary norm.

In 1972, at the age of 21, John Callahan was involved in a car crash that severed his spine and made him a quadriplegic. A heavy drinker since the age of 12, the accident could have been the beginning of a downward spiral. Instead, it sparked a personal transformation. After extensive physical therapy, he was eventually able to grasp a pen in his right hand and make rudimentary drawings. By 1978, Callahan had sworn off drinking for good and begun to draw cartoons. Over the next three decades, Callahan would become one of the nation's most beloved cartoonists.

So begins Chloé Cooper Jones’s bold, revealing account of moving through the world in a body that looks different than most. Jones learned early on to factor “pain calculations” into every plan, every situation. Born with a rare congenital condition called sacral agenesis which affects both her stature and gait, her pain is physical. But there is also the pain of being judged and pitied for her appearance, of being dismissed as “less than.”

When Jackie Schuld’s therapist suggested she might be autistic, she scoffed. She knew there was no way she could be autistic. She was in her mid-30s and ran her own therapy private practice. Everything she learned about autism in her Master’s program in mental health counseling didn’t apply to her. She could make excellent eye contact. She could engage in deep conversations. She could attend social gatherings. She could make it through abrupt changes and remain flexible. How could she be autistic? The more she learned about autism — how it internally impacts autistics and how it can...

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the workarounds he did to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But by the time he was a prospective college student and couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was unavoidable: his hearing was going, and fast. A personal soundtrack was Hay’s determined compensation for his condition.

A short, inspirational audiobook from Henry Fraser, a young quadriplegic motivational speaker and artist. Henry Fraser was a 17-year-old sports enthusiast and senior prefect when he broke his spinal cord and was left paralysed from the shoulders down. Life as he knew it was over, and yet, through extraordinary determination and a positive attitude, he has forged a successful career as an inspirational speaker and an artist.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem-cell transplant surgery could restore May's vision.

In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?

Weeks after giving birth, Holly Frances went from being a healthy 26-year-old new mom to paralyzed and on life support—in less than 72 hours. Diagnosed with a rare autoimmune disorder called Guillain-Barre Syndrome, Holly was trapped in her body, unable to move, speak, or hold her newborn daughter. Life Support tells the story of how Holly struggled to overcome the despair, hopelessness and physical pain, to regain her health and get back to being a mother to her daughter.

On January 21, 2008, a routine medical procedure left Mallory paralyzed from her waist down. Less than two years later, Mallory had broken eight world records, and by the 2012 Paralympic Games, she held fifteen world records and thirty-four American records. Two years after that, a devastating fall severely damaged her left arm. But despite all of the hardships that Mallory faced, she was sure about one thing: she refused to give up.

On a hot July afternoon, Joni Eareckson Tada's life was dramatically altered in a split second. A reckless dive into shallow water took an athletic young woman from health and success to life as a quadriplegic in a wheelchair. In the 45 years since the release of this book - which has more than five million copies in print in over 40 languages - Joni's earnest struggle to find hope has resonated with millions of listeners around the world.

Vaneetha Risner contracted polio as an infant, was misdiagnosed, and lived with widespread paralysis. She lived in and out of the hospital for 10 years and, after each stay, would return to a life filled with bullying. When she became a Christian, though, she thought things would get easier, and they did: carefree college days, a dream job in Boston, and an MBA from Stanford where she met and married a classmate. But life unraveled. Again.

Ido in Autismland opens a window into non-verbal autism through dozens of short, autobiographical essays each offering new insights into autism symptoms, effective and ineffective treatments, and the inner emotional life of a severely autistic boy. In his pithy essays, author Ido Kedar, a brilliant 16-year-old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.

When Anna Gazmarian is diagnosed with bipolar disorder in 2011, she’s faced with a conundrum: while the diagnosis provides clarity about her manic and depressive episodes, she must confront the stigma that her evangelical community attaches to her condition. Over the course of ten years, we follow Anna on her journey to reframe her understanding of mental health to expand the limits of what her religious practice can offer. In Devout: A Memoir of Doubt, Anna shows that the pursuing our emotional health and our spiritual well-being is one single mission and, in both cases, an act of faith.

Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.