Showing titles in People with Disabilities

No Centro Hospitalar Psiquiátrico de Barbacena, conhecido apenas por Colônia, ocorreu uma das maiores barbáries da história do Brasil. O centro recebia diariamente, além de pacientes com diagnóstico de doença mental, homossexuais, prostitutas, epiléticos, mães solteiras, meninas problemáticas, mulheres engravidadas pelos patrões, moças que haviam perdido a virgindade antes do casamento, mendigos, alcoólatras, melancólicos, tímidos e todo tipo de gente considerada fora dos padrões sociais.

Meg Zucker was born with one finger on each hand, shortened forearms, and one toe on each misshapen foot, caused by a genetic condition called ectrodactyly. She would eventually pass this condition on to her two sons, and, along with her husband, raise them and their adopted daughter, who has her own invisible differences. Born of the family’s hard-won experiences, this book offers invaluable advice on raising confident, empathetic, and resilient children who succeed, not despite but because of their differences.

In The Price of Silence she takes a devastating look at how we address mental illness, especially in children, who are funneled through a system of education, mental health care, and juvenile detention that leads far too often to prison. In the end she asks one central question: if there's a poster child for cancer, why can't there be one for mental illness? The answer: the stigma.

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.

Three months into her pregnancy with her first child, Hilary Yancey received a phone call that changed everything. As she learned the diagnosis - cleft lip and palate, a missing right eye, possible breathing complications - Hilary began to pray in earnest. Even in the midst of these findings, she prayed that God would heal her son. God could do a miracle unlike anything she had seen. Only when Hilary held her baby, Jack, in her arms for the first time did she realize God had given her something drastically different than what she had demanded.

In the tiny Iowa farm town of Atalissa, dozens of men, all with intellectual disabilities and all from Texas, lived in an old schoolhouse. Before dawn each morning, they were bussed to a nearby processing plant, where they eviscerated turkeys in return for food, lodging, and $65 a month. They lived in near servitude for more than 30 years, enduring increasing neglect, exploitation, and physical and emotional abuse.

A single mother of five, Ellen Rogers has endured her fair share of tragedy, having lost both her first husband and stepdaughter to cancer. But nothing could have prepared Rogers for the June 2005 car accident that left her son Ned - now 25 years old - a quadriplegic with a brain injury. The road to Ned's recovery was long and discouraging, but when Helping Hands: Monkey Helpers for the Disabled stepped in to provide him with a service animal to help him cope with his disabilities, things turned around.

In this arresting collection, The Cyborg Jillian Weise navigates the intersection of disability and desire, wending her way through diners, bars, and dark living rooms lit by TV screens. Her words flit in and out of DMs, texts, and video chats, exploring the vital human thread that runs through the machines mediating our existence. Weaving personal narrative with cultural commentary and lyricism, these poems blur the line between flesh and technology, centering disabled and queer bodies and challenging our preconceptions of everything from opiate use to BDSM.

With cerebral palsy binding him to a wheelchair and slowing his speech, Todd's physical weaknesses have always been apparent. He's never had the option of hiding his weaknesses. Escape - impossible. But through God's movement in the trials, Todd became deeply thankful for what many would consider devastating. Weak Is the New Strong is an invitation to journey through Todd's touching stories and dynamic biblical explorations of God's view of weakness, and to discover how your greatest weakness - whatever it is - can be transformed by God's strength.

For more than 40 years, professionals in the field of disability studies have engaged in debates over the use of aversive interventions (such as electric shock) like the ones used at the Judge Rotenberg Center. This book is a historical case study of the Judge Rotenberg Center, named after the judge who ruled in favor of keeping its doors open to use aversive interventions.

Disability is often described as a tragedy, a crisis, or an aberration, though 1 in 5 people worldwide have a disability. Why is this common human experience rendered exceptional? In All Our Families, disability studies scholar Jennifer Natalya Fink argues that this originates in our families. When we cut a disabled member out of the family story, disability remains a trauma as opposed to a shared and ordinary experience. This makes disability and its diagnosis traumatic and exceptional.

While finishing off her degree in Gerontology at Umass Boston, Yvonne Decelis started writing about her life in the hope of showing others with similar conditions that they are not alone in the trials they face. Yvonne goes over her upbringing and life prior to, during, and after diagnosis covering things like medications, “healthful living”, work, SSDI disability benefits, friendships, and relationships, etc. This was also written for people seeking information on how to interact with others who have "invisible illnesses" like MS, Fibro, Post-traumatic Stress injury, etc.

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage?

Jen Powley was diagnosed with multiple sclerosis at 15. By 35, she had lost the use of her arms and legs. Just Jen is a powerful memoir that tells the story of Powley’s life at the time of her diagnosis and the infinite, irrevocable ways it has changed since. Powley’s writing pulls no punches. She is lively, bold, and unapologetic, answering questions people are often afraid to ask about living with a progressive disease.

Just Care is Akemi Nishida’s thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change.

Ben Mattlin's wife, ML, recalls falling in love with his confidence and sheer determination. On one of their earliest dates, he persuaded her to ride on his lap in his wheelchair on their way home from an Elvis Costello concert. Thirty years later, they still travel like this from time to time, undaunted by the curious stares following them down the street. But In Sickness and in Health is more than an "inspiring" story of how a man born with spinal muscular atrophy

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem cell transplant surgery could restore May's vision.

With Mental Health, Inc., award-winning investigative journalist Art Levine delivers a Shock Doctrine-style exposé of the failures of our out-of-control, profits-driven mental health system, with a special emphasis on the failures of the pharmaceuticals industry, including the treatment of children with antipsychotics and disastrous PTSD protocols for veterans.

We think of perception as a passive, mechanical process, as if our eyes are cameras and our ears microphones. But as neurobiologist Susan R. Barry argues, perception is a deeply personal act. Our environments, our relationships, and our actions shape and reshape our senses throughout our lives. This idea is no more apparent than in the cases of people who gain senses as adults. Barry tells the stories of Liam McCoy, practically blind from birth, and Zohra Damji, born deaf, in the decade following surgeries that restored their senses.

They put a price on his head. They did everything they could to disrupt his mission. Finally, when an antitank mine tore off his right foot, the warriors of jihad in Iraq thought they had neutralized one of their most resourceful, determined foes.