Global Hemophilia Report Por arte de portada

Global Hemophilia Report

De: BloodStream Media
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  • Resumen

  • Led by science, curiosity, and storytelling, the Global Hemophilia Report from BloodStream Media is an entertaining monthly journey through the investigations and science driving hemophilia research around the world. Produced by: Believe Limited & BloodStream Media Hosted by: Patrick James Lynch Senior Advisor: Dr. Donna DiMichele Featured Advertiser: Sanofi Genzyme #GHRpod #hemophilia #clinicalresearch #bloodstreammedia
    2022
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Episodios
  • Lived Experience Experts: Taking Their Rightful Place at the Research Table

    Lived Experience Experts: Taking Their Rightful Place at the Research Table
    Jun 27 2024

    In this episode of the Global Hemophilia Report, we delve into the crucial role of Lived Experience Experts (LEEs) in hemophilia research. Featuring a distinguished panel, the discussion covers the evolution, importance, and future of LEE involvement in research. The episode emphasizes the pivotal contributions of LEEs in making research more relevant and impactful, driven by personal and community experiences.

    Contributors:

    Len Valentino MD

    Samantha Carlson MSW, LMSW

    Randy Curtis

    Ray Stanhope

    Kyle Davis MD

    Senior Advisor: Donna DiMichele, MD

    Special Episode Advisor: Maria Santaella PhD(c), MSN, RN-BC, CPHON

    Hosted & Written by: Patrick James Lynch

    Featured Advertiser:

    Sanofi

    Subscribe to the Global Hemophilia Report

    Show Notes:

    Presenting Sponsor: Sanofi

    Subscribe to the Global Hemophilia Report

    Connect with the Global Hemophilia Report

    Global Hemophilia Report on LinkedIn

    Global Hemophilia Report on Twitter

    Global Hemophilia Report on Facebook

    Connect with BloodStream Media:

    BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on Twitter

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    50 m
  • Caregivers and Novel Therapies - Alleviating or Replacing Concerns?

    Caregivers and Novel Therapies - Alleviating or Replacing Concerns?
    May 30 2024

    Our panel of subject matter and lived experience experts engage in a data-driven discussion about caregiver burden in hemophilia, historically, and how the rapidly evolving treatment landscapes impacts that burden.



    Contributors:

    Michelle Witkop, DNP, FNP-BC

    Kate Khair, PhD

    Beatriz Caceres, MD

    Kasha Lumsden, BSN, RN, RAC-CT

    Yasmin Pavri

    Senior Advisor: Donna DiMichele, MD

    Special Episode Advisor: Michelle Witkop, DNP, FNP-BC

    Hosted & Written by: Patrick James Lynch

    Featured Advertiser:

    Sanofi

    Subscribe to the Global Hemophilia Report

    Show Notes:

    Presenting Sponsor: Sanofi

    Subscribe to the Global Hemophilia Report

    Connect with the Global Hemophilia Report

    Global Hemophilia Report on LinkedIn

    Global Hemophilia Report on Twitter

    Global Hemophilia Report on Facebook

    Connect with BloodStream Media:

    BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on Twitter

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    40 m
  • World Hemophilia Day

    World Hemophilia Day
    Apr 26 2024

    On this episode of the Global Hemophilia Report, host Patrick James Lynch is on location in Madrid, Spain for the WFH 2024 World Congress. Patrick talks about the history of World Hemophilia Day and talks with some of the attendees at the congress.

    Contributors:

    Hazri Aris

    Johnny Mahlangu

    Rebecca, Hematology Resident

    Senior Advisor: Donna DiMichele, MD

    Hosted & Written by: Patrick James Lynch

    Featured Advertiser:

    Sanofi

    Subscribe to the Global Hemophilia Report

    Show Notes:

    Presenting Sponsor: Sanofi

    Subscribe to the Global Hemophilia Report

    Connect with the Global Hemophilia Report

    Global Hemophilia Report on LinkedIn

    Global Hemophilia Report on Twitter

    Global Hemophilia Report on Facebook

    Connect with BloodStream Media:

    BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on Twitter
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    26 m
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