• Lived Experience Experts: Taking Their Rightful Place at the Research Table

  • Jun 27 2024
  • Duración: 50 m
  • Podcast

Lived Experience Experts: Taking Their Rightful Place at the Research Table  Por  arte de portada

Lived Experience Experts: Taking Their Rightful Place at the Research Table

  • Resumen

  • In this episode of the Global Hemophilia Report, we delve into the crucial role of Lived Experience Experts (LEEs) in hemophilia research. Featuring a distinguished panel, the discussion covers the evolution, importance, and future of LEE involvement in research. The episode emphasizes the pivotal contributions of LEEs in making research more relevant and impactful, driven by personal and community experiences.

    Contributors:

    Len Valentino MD

    Samantha Carlson MSW, LMSW

    Randy Curtis

    Ray Stanhope

    Kyle Davis MD

    Senior Advisor: Donna DiMichele, MD

    Special Episode Advisor: Maria Santaella PhD(c), MSN, RN-BC, CPHON

    Hosted & Written by: Patrick James Lynch

    Featured Advertiser:

    Sanofi

    Subscribe to the Global Hemophilia Report

    Show Notes:

    Presenting Sponsor: Sanofi

    Subscribe to the Global Hemophilia Report

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    Connect with BloodStream Media:

    BloodStreamMedia.com

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