Imperfect Heart

De: Jeff Holden
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  • Resumen

  • Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge. The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.
    © 2023 Imperfect Heart
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Episodios
  • Episode 40: Meetup Session- Post Surgery Recovery. Our (VERY!) Candid Discussion.

    Episode 40: Meetup Session- Post Surgery Recovery. Our (VERY!) Candid Discussion.
    Oct 3 2024
    What if the very medication meant to ease your post-surgery pain ends up causing a whole new set of problems? This episode pulls back the curtain on the real-life challenges of post-surgery recovery, starting with the digestive issues caused by pain medications like oxycodone. You’ll hear firsthand accounts of the shift from relying on narcotics to managing pain with ibuprofen & Tylenol to minimize constipation, including the embarrassing and frustrating moments that come with it. We explore not just the physical ramifications but the emotional toll of trying to balance effective pain relief with uncomfortable side effects. Celebrate the small yet significant victories of recovery with us, from walking around the block to taking a shower independently, or just getting a shirt on or off! We dive into the emotional rollercoaster that accompanies healing, marked by fluctuating health, unexpected setbacks, and the importance of mental health support. Sharing practical tips for managing back pain and finding comfortable sleep arrangements, this episode underscores the need for patience and resilience. Each personal story highlights the non-linear nature of recovery, reminding listeners that healing is a process with both triumphs and setbacks. The trendline is not linear but as long as it continues upward, that's a good thing. Finally, join us as we explore the path to reclaiming normalcy during cardiac rehabilitation and the quest for post-hospital independence. Hear about the emotional and physical struggles faced in rehab, the anxious moments of driving again, and the cautious steps taken to regain independence. Personal stories bring to life the feelings of vulnerability and reliance on others, providing reassurance and support to anyone on this challenging journey. Listen in for a candid, heartfelt discussion that aims to provide hope and encouragement to those navigating the difficult path of recovery. As the host, I have to admit reliving this experience had it's highs and lows but having the discussion amongst friends who have been through the same things, was not only comforting, but sad to see it end. This was the last session of the day before everyone left to return home to wherever that was. Putting the episode together reminded me again that we need others to support us, we need to share our stories and there is nothing like being together in-person to discuss our situations. Thank you all again for your participation and I sincerely hope that as you listen, you get some comfort, hope and awareness that we are all unique individuals and that everyone who has the surgery is going to have a different outcome than the person before or after them. Continued success on your journeys and welcome each day with positivity and gratitude. (00:00) Post-Surgery Recovery and Pain Management Post-surgery experiences with pain management, digestive challenges, and balancing medication side effects while recovering. (11:23) Challenges and Triumphs in Recovery Recovery after a medical procedure involves celebrating small victories, dealing with setbacks, and seeking mental health support. (21:34) Challenges of Cardiac Rehab Challenges and experiences in cardiac rehab and recovery, including delayed start, physical struggles, and milestones achieved. (27:02) Adjusting to Post-Hospital Independence Recovery after a medical event involves regaining independence, facing fears, and taking cautious steps towards normalcy.
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    31 m
  • Episode 39: Meetup Session-The Caregivers Perspective On Living With a Myocardial Bridged Partner.

    Episode 39: Meetup Session-The Caregivers Perspective On Living With a Myocardial Bridged Partner.
    Sep 25 2024
    Live from the Imperfect Heart meetup, this episode features an intimate and heartfelt roundtable discussion among the patients and their caregivers who have all experienced the effects of a myocardial bridge on their loved one. Participants share their personal stories, their reactions to the diagnoses, treatments, and ongoing struggles post surgery. They discuss the emotional and physical impacts of their journeys side-by-side with their loved one, the importance of a being supportive partner, and the value a caregiver provides in simply getting comfortable with a new life. Special attention is given to the dynamics of relationships under stress, the role of caregivers, and the significance of faith and perseverance. Some participants also share the specifics of various medical procedures they have undergone, including traditional and robotic heart surgeries, and the impact on their lives post-surgery as well as the changes in relationships once the procedure is complete. These candid conversations should provide a backdrop for others to see what success looks like in both the journey up to and post surgery. What an incredible group of partners everyone of the patients were so blessed to have. Episode Chapters 00:00 Introductions and Initial Thoughts 00:48 Jeff's Health Journey 02:50 Caregiver Experiences and Challenges 06:05 Decisions and Reflections on Surgery 09:13 Post-Surgery Realities and Adjustments 12:30 Unique Experiences and Perspectives 24:32 A Heart Attack Experience 24:48 Medical Journey and Challenges 27:25 Exploring Treatment Options 32:39 Family Impact and Discussions 39:41 Reflections and Realizations
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    57 m
  • Imperfect Heart Meetup Thank You & Shout Outs.

    Imperfect Heart Meetup Thank You & Shout Outs.
    Sep 20 2024
    These things don't happen in a vacuum so I just wanted to express my appreciation for everyone that took the time out of their weekend to show up, contribute and use their stories to the benefit of others. I also know every one of those in attendance are going to push out to their sphere of medical professionals to continue to keep the pressure up until we get complete acceptance that myocardial bridges are symptomatic. For that, I'm grateful from the bottom of my imperfect heart. We'll be posting recordings of additional sessions during the event over the course of the next few weeks. I hope you enjoy them all and find them both useful and helpful. If you find these were helpful, share it in a comment or send me an email. We want to do as much as possible to support those of you in need. Stay positive, in rhythm and let the beats go on!
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    3 m
Ejercicio y Actividad Física Enfermedades Físicas Hygiene & Healthy Living
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