Episodios

  • Episode 40: Meetup Session- Post Surgery Recovery. Our (VERY!) Candid Discussion.

    Episode 40: Meetup Session- Post Surgery Recovery. Our (VERY!) Candid Discussion.
    Oct 3 2024
    What if the very medication meant to ease your post-surgery pain ends up causing a whole new set of problems? This episode pulls back the curtain on the real-life challenges of post-surgery recovery, starting with the digestive issues caused by pain medications like oxycodone. You’ll hear firsthand accounts of the shift from relying on narcotics to managing pain with ibuprofen & Tylenol to minimize constipation, including the embarrassing and frustrating moments that come with it. We explore not just the physical ramifications but the emotional toll of trying to balance effective pain relief with uncomfortable side effects. Celebrate the small yet significant victories of recovery with us, from walking around the block to taking a shower independently, or just getting a shirt on or off! We dive into the emotional rollercoaster that accompanies healing, marked by fluctuating health, unexpected setbacks, and the importance of mental health support. Sharing practical tips for managing back pain and finding comfortable sleep arrangements, this episode underscores the need for patience and resilience. Each personal story highlights the non-linear nature of recovery, reminding listeners that healing is a process with both triumphs and setbacks. The trendline is not linear but as long as it continues upward, that's a good thing. Finally, join us as we explore the path to reclaiming normalcy during cardiac rehabilitation and the quest for post-hospital independence. Hear about the emotional and physical struggles faced in rehab, the anxious moments of driving again, and the cautious steps taken to regain independence. Personal stories bring to life the feelings of vulnerability and reliance on others, providing reassurance and support to anyone on this challenging journey. Listen in for a candid, heartfelt discussion that aims to provide hope and encouragement to those navigating the difficult path of recovery. As the host, I have to admit reliving this experience had it's highs and lows but having the discussion amongst friends who have been through the same things, was not only comforting, but sad to see it end. This was the last session of the day before everyone left to return home to wherever that was. Putting the episode together reminded me again that we need others to support us, we need to share our stories and there is nothing like being together in-person to discuss our situations. Thank you all again for your participation and I sincerely hope that as you listen, you get some comfort, hope and awareness that we are all unique individuals and that everyone who has the surgery is going to have a different outcome than the person before or after them. Continued success on your journeys and welcome each day with positivity and gratitude. (00:00) Post-Surgery Recovery and Pain Management Post-surgery experiences with pain management, digestive challenges, and balancing medication side effects while recovering. (11:23) Challenges and Triumphs in Recovery Recovery after a medical procedure involves celebrating small victories, dealing with setbacks, and seeking mental health support. (21:34) Challenges of Cardiac Rehab Challenges and experiences in cardiac rehab and recovery, including delayed start, physical struggles, and milestones achieved. (27:02) Adjusting to Post-Hospital Independence Recovery after a medical event involves regaining independence, facing fears, and taking cautious steps towards normalcy.
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    31 m
  • Episode 39: Meetup Session-The Caregivers Perspective On Living With a Myocardial Bridged Partner.

    Episode 39: Meetup Session-The Caregivers Perspective On Living With a Myocardial Bridged Partner.
    Sep 25 2024
    Live from the Imperfect Heart meetup, this episode features an intimate and heartfelt roundtable discussion among the patients and their caregivers who have all experienced the effects of a myocardial bridge on their loved one. Participants share their personal stories, their reactions to the diagnoses, treatments, and ongoing struggles post surgery. They discuss the emotional and physical impacts of their journeys side-by-side with their loved one, the importance of a being supportive partner, and the value a caregiver provides in simply getting comfortable with a new life. Special attention is given to the dynamics of relationships under stress, the role of caregivers, and the significance of faith and perseverance. Some participants also share the specifics of various medical procedures they have undergone, including traditional and robotic heart surgeries, and the impact on their lives post-surgery as well as the changes in relationships once the procedure is complete. These candid conversations should provide a backdrop for others to see what success looks like in both the journey up to and post surgery. What an incredible group of partners everyone of the patients were so blessed to have. Episode Chapters 00:00 Introductions and Initial Thoughts 00:48 Jeff's Health Journey 02:50 Caregiver Experiences and Challenges 06:05 Decisions and Reflections on Surgery 09:13 Post-Surgery Realities and Adjustments 12:30 Unique Experiences and Perspectives 24:32 A Heart Attack Experience 24:48 Medical Journey and Challenges 27:25 Exploring Treatment Options 32:39 Family Impact and Discussions 39:41 Reflections and Realizations
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    57 m
  • Imperfect Heart Meetup Thank You & Shout Outs.

    Imperfect Heart Meetup Thank You & Shout Outs.
    Sep 20 2024
    These things don't happen in a vacuum so I just wanted to express my appreciation for everyone that took the time out of their weekend to show up, contribute and use their stories to the benefit of others. I also know every one of those in attendance are going to push out to their sphere of medical professionals to continue to keep the pressure up until we get complete acceptance that myocardial bridges are symptomatic. For that, I'm grateful from the bottom of my imperfect heart. We'll be posting recordings of additional sessions during the event over the course of the next few weeks. I hope you enjoy them all and find them both useful and helpful. If you find these were helpful, share it in a comment or send me an email. We want to do as much as possible to support those of you in need. Stay positive, in rhythm and let the beats go on!
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    3 m
  • Episode 38: Meetup Session Live With Dr. Kofidis on Myocardial Bridge Scarring and More.

    Episode 38: Meetup Session Live With Dr. Kofidis on Myocardial Bridge Scarring and More.
    Sep 18 2024
    Is there a right surgical approach that completely transforms the lives of patients with myocardial bridges? This episode is a live recording of the first ever myocardial bridge meetup where Dr. Theo Kofidis, took the time to virtually join us from Greece for the first session of the day. We learned of his ambitious project of revamping a JCI accredited hospital into a cutting-edge medical facility. He takes questions from the group including attendee Jane's prolonged struggle with myocardial bridge symptoms and provides suggestions and support from his perspective. He shares insights into the significance of timely intervention and the crucial consideration of surgical options when medication fails. Questions from the group included best practices for unroofing a myocardial bridge. Dr. Kofidis outlines the meticulous surgical techniques that ensure optimal outcomes in his opinion. We dig deeper into the importance of global collaboration among healthcare professionals to enhance treatment efficacy and work toward identifying long term, symptom free patients to better support proper procedures for "unroofing". We spoke of advanced diagnostic tools like 3D reconstruction and high-frequency ultrasound that aid in post-operative evaluation, and heard why minimally invasive endoscopic approaches, complemented by tactile feedback, offer significant benefits. The group got expert advice on achieving comprehensive and precise surgical results for myocardial bridges that we're now sharing with anyone interested. Finally, we ventured into the realm of advanced diagnostics and the role of AI in cardiology. Dr. Kofidis discussed the underdiagnosed prevalence of myocardial bridges and their connection to coronary artery disease and coronary artery spasms. We conclude with an engaging discussion on medical tourism in Greece, highlighting its potential advantages and the robust support system within the medical community. Dr. Kofidis, as always, offers his expert advice and invites any concerned or interested party to reach out for a discovery call to see if Greece might be an option for you. What a special treat it was indeed. You cab reach Dr. Kofidis by email: tkofidis@hotmail.de Episode Chapter Summaries (00:00) Myocardial Bridge Treatment and ComplicationsDr. Kofidis discusses his transition to a new hospital, upcoming operations on myocardial bridge patients, and the importance of prompt treatment and medical options. (14:59) Optimal Methods for Myocardial Bridge UnroofingNature's intricacies of unroofing a myocardial bridge, collaboration between surgeons and cardiologists, and use of advanced diagnostic tools. (22:49) International Heart Surgery Center in AthensCT scanning technology and AI in cardiology improve accurate diagnosis of myocardial bridges and their relationship with coronary artery disease. (35:43) Heart Surgery Tourism ConversationDr. Kofidis and I discuss the pleasure of visiting Greece, medical tourism, and the supportive network within the medical community.
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    39 m
  • Episode 37: Dr. Allan Stewart’s Childhood Appreciation of Mechanics Lead to “Unroofing” of Myocardial Bridges.

    Episode 37: Dr. Allan Stewart’s Childhood Appreciation of Mechanics Lead to “Unroofing” of Myocardial Bridges.
    Sep 11 2024
    What if the future of heart surgery didn't involve massive scars and long recovery times? On this episode we'll visit the pioneering world of minimally invasive cardiac procedures through the eyes of Dr. Allan Stewart, Medical Director and Chief of Cardiovascular Surgery at HCA Florida Mercy Hospital. A leading cardiac surgeon, his journey from childhood started with an understanding of mechanics that led to groundbreaking medical innovations. His path is nothing short of inspiring. Dr. Stewart shares the pivotal moments that led him to transform the field, including a captivating Nova episode on pediatric heart transplants, and his many years of practice using minimally invasive techniques. Ever wondered how surgeons tackle the complexities of myocardial bridges? Dr. Stewart takes us on a compelling journey through his unexpected dive into this challenging area while at Columbia University. He explains the intricacies of diagnosing and treating these conditions, and the critical decision-making involved in whether to perform surgeries on a beating heart or with a pump. From ensuring precision to avoid catastrophic complications like cutting the artery, to the difficulty of accurate diagnosis, this segment shines a light on both the art and science of cardiac surgery. Finally, we'll delve into the crucial importance of thorough and precise surgical intervention. Incomplete arterial surgeries can lead to devastating consequences, including the need for complex redo surgeries. Dr. Stewart emphasizes the necessity of proper techniques to prevent complications and stresses the importance of educating both patients and cardiologists about the risks associated with myocardial bridges and inappropriate stent use. Join us for this enlightening conversation, and on a lighter note, I look forward to a future bike ride together in South Florida. Don't miss this episode with one of the field's most innovative minds. To reach Dr. Stewart a voice mail or text message was suggested as best. 917-748-7836 To learn more about Dr. Stewart click on the link: Dr. Allan Stewart Episode Highlights (00:17 - 00:40) Becoming a Leading Cardiac Surgeon (03:55 - 05:37) Assessing Candidates for Thoracotomy (09:50 - 11:27) Minimally Invasive Approach in Surgery (14:20 - 15:46) Advanced Imaging Technology in Cardiology (18:58 - 19:57) Robotic vs Full Heart Surgery (23:01 - 23:52) Successful Artery Surgery Examination (31:15 - 33:04) Traveling for Specialized Medical Procedures Chapter Summaries (00:00) Cardiac Surgeon Discusses Minimally Invasive Procedures Dr. Stewart shares his journey to becoming a pioneer in less invasive cardiac surgeries, emphasizing the importance of minimizing trauma and improving cosmetic outcomes. (05:39) Advances in Myocardial Bridge Diagnosis My journey into addressing myocardial bridges began serendipitously and involves challenges such as diagnosis and surgical techniques. (19:59) Cardiac Surgery Complications and Stress Relief Proper surgical techniques and education are crucial in preventing complications and misdiagnosis of arterial bridges in heart surgery. (33:43) Importance of Complete Artery Surgery Nature's arterial bypass and stent surgeries, complications from incomplete procedures, and importance of thorough intervention.
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    35 m
  • Episode 36: Pete Furman’s Push to Get Proper Insurance Acceptance for His Myocardial Bridge

    Episode 36: Pete Furman’s Push to Get Proper Insurance Acceptance for His Myocardial Bridge
    Aug 28 2024
    Join me for an enlightening episode of the Imperfect Heart Program, where I sit down with Pete Furman, a competitive cyclist who shares his unexpected heart health journey. Despite his excellent physical condition, Pete experienced mysterious symptoms like hand tingling, jaw pain, and a decline in athletic performance. Initially misdiagnosed with conditions such as idiopathic peripheral neuropathy and exercise-induced asthma, Pete's story underscores the importance of not dismissing unusual sensations or discomforts, even if you’re physically fit. Listen in as Pete emphasizes the critical need for proper medical evaluation and awareness of heart health. In this episode, we also tackle the intricate world of health insurance, particularly when it comes to managing complex medical conditions and surgical approvals. Navigating the maze of insurance plans like HMOs and understanding the fine print can be daunting, as highlighted by our discussion on unroofing surgery and the challenges of getting necessary treatments approved. We offer valuable insights and practical advice on dealing with insurance companies, filing appeals, and the importance of being detail-oriented and persistent in finding solutions. Pete's journey continues as he prepares for heart surgery, sharing his emotional roller coaster from initial diagnosis to the anticipation and anxiety surrounding his unroofing surgery. The support from his wife Lisa and friends in Sedona plays a crucial role in keeping his spirits high. We also explore the importance of a determined mindset and connecting with others who have undergone similar experiences. This episode is packed with heartfelt discussions, practical advice, and inspiring stories that offer hope and guidance to anyone navigating heart health issues and the complexities of the healthcare system. Episode Highlights (01:15 - 02:55) Imperfect Heart Program With Pete Furman (10:57 - 12:12) Challenges in Medical Treatment Journey (18:47 - 20:56) Navigating Health Insurance Challenges (24:20 - 25:47) Health Plan Denials and Appeals (29:09 - 31:11) Effects of Pericarditis and Scar Tissue (41:27 - 42:05) Health Insurance Coverage Denial Appeal Chapter Summaries (00:06) Heart Health Journey and Awareness Competitive cyclist Pete Furman shares his journey with heart health issues, emphasizing the importance of not dismissing symptoms. (15:09) Navigating Health Insurance for Surgery Managing a complex medical condition with medication and lifestyle changes, navigating insurance approvals, and advocating for necessary treatments. (22:13) Health Insurance Challenges and Surgical Considerations Navigating healthcare systems, insurance approvals and appeals, and the importance of post-surgery outcomes for informed decision-making. (31:13) Navigating Heart Surgery and Recovery Pete's emotional and physical journey preparing for heart surgery, including drug therapy, support network, determined mindset, and future plans for post-surgery discussions. (39:14) Navigating Insurance Appeals and Alternatives Navigating insurance issues requires proactive research and persistence, with potential benefits for the wider community.
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    40 m
  • Episode 35: An Important Message and Updates From Your Host.

    Episode 35: An Important Message and Updates From Your Host.
    Aug 15 2024
    Imagine waking up each day with a renewed sense of hope and determination, knowing you're part of a community that truly understands your journey. In this special update episode of Imperfect Heart, I, Jeff Holden, am thrilled to share our exciting plans and new features for the podcast through the end of the year. We’re sticking to our consistent publishing schedule—episodes drop on the second and last Wednesday of each month—and gearing up for an engaging meetup on September 14th in Sacramento. Join us! (The invite is in the show notes.) This gathering will be a fantastic opportunity for rich interactions and shared stories, making it a can't-miss event. Reflecting on our progress, we've expanded our release cadence and featured a wide range of healthcare professionals and patient stories, and we're looking forward to bringing you even more thought-provoking discussions with renowned doctors and the latest research updates. Plus, don't forget about our new short-form news pods designed to keep you informed with timely information. A heartfelt thank you to all our listeners for your incredible support and engagement. We need to work together to tell more stories and convert more healthcare professionals to an understanding this condition is cutting lives short and really change the way of thinking that exists in so many medical communities. We'll continue to share motivational stories that inspire hope for those dealing with heart conditions, especially myocardial bridges. The importance of understanding and improving everyone's situation is emphasized, ensuring you know you're not alone. If you have a myocardial bridge, be sure to join the private Facebook group, Myocardial Bridge Support Group. And don’t forget to leave positive reviews or comments, subscribe, and share to help spread awareness. Remember, welcoming each day with gratitude and positivity can make a significant difference in your journey. To be a guest on the program, you can reach out directly to me via email: jeff@hearmenowstudio.com. I hope to hear from you. The link to RSVP for the first ever Myocardial Bridge Meetup is below. https://www.eventbrite.com/e/imperfect-heart-myocardial-bridge-meetup-tickets-934694605727?utm-campaign=social&utm-content=attendeeshare&utm-medium=discovery&utm-term=listing&utm-source=cp&aff=ebdsshcopyurl Chapter Summaries (00:16) Imperfect Heart Podcast Update Imperfect Heart's upcoming events, diverse stories, and engaging discussions with doctors and research updates on myocardial bridges. (07:07) Heartfelt Thank You to Listeners Expressing gratitude for support, sharing motivational stories, joining support group, reaching out for reviews and spreading awareness.
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    9 m
  • Episode 34: Hereditary Heart Disease and a Cross Continent Cardiac Cure. Mary McDonalds Journey to Greece.

    Episode 34: Hereditary Heart Disease and a Cross Continent Cardiac Cure. Mary McDonalds Journey to Greece.
    Jul 31 2024
    Ever wonder how someone can maintain a healthy lifestyle yet still face severe heart issues? Join me as I unpack Mary McDonald's gripping journey through hereditary heart disease, starting with her struggles with high blood pressure. Despite her best efforts to stay healthy, Mary’s initial disregard for medical advice led to severe complications, including a wake-up call from foot surgery. This episode underscores the crucial lesson of heeding medical guidance when hereditary caardiac conditions are in play. Through a rollercoaster of diagnoses and treatments, Mary’s story takes us deep into the labyrinth of heart disease diagnostics. After facing conflicting advice and even a suggestion to consult a psychiatrist, Mary’s persistence led her to explore treatments at Stanford. Her tale of moderate heart valve regurgitation and a myocardial bridge reveals the challenges of being misunderstood by the medical community and the importance of self-advocacy and finding a supportive medical team. Then, travel with Mary to Greece, where she underwent "unroofing" heart surgery and received exemplary care from Dr. Kofidis and Dr. Patakos at Hygia Hospital. Her detailed account compares the medical care in Greece to that in the U.S., offering insights into her recovery journey, including overcoming severe back pain and managing osteoporosis. Ending on a high note, Mary’s resilience shines through as she shares her marathon ambitions and renewed passion for flying. This episode is a testament to the power of perseverance, optimism, and self-advocacy in the face of the uncertainty of cardiac health challenges. You can find Hygia Health Care in this link: https://www.hygeia.gr/ To learn more about Myocardial Bridges, visit: https://www.myimperfectheart.com/ CHAPTER TIMESTAMPS: (00:00) Myocardial Bridge Discovery and Treatment (09:35) Diagnostic Journey of Heart Conditions (23:22) Medical Care in Greece (26:57) Post-Heart Surgery Pain Management Plan (40:09) Recovery From Heart Surgery and Flying (48:42) Overcoming Situational Depression and Heart Surgery (55:10) Recovery and Positivity in Heart Surgery CHAPTER SUMMARIES: (00:00) Myocardial Bridge Discovery and TreatmentMary McDonald's journey with hereditary heart disease highlights the importance of adhering to medical advice and challenges of managing the condition. (09:35) Diagnostic Journey of Heart ConditionsA patient shares her emotional and physical journey navigating heart disease, including conflicting diagnoses, extensive research, and seeking the right care. (23:22) Medical Care in GreecePersonal account of heart surgery in Greece, guided by international coordinator and skilled medical team, with exemplary care and facilities. (26:57) Post-Heart Surgery Pain Management PlanPersonal account of heart surgery, challenges with osteoporosis, exceptional ICU care, and pain management differences. (40:09) Recovery From Heart Surgery and FlyingResilience, determination, and a positive attitude help overcome challenges, including early discharge, jogging post-operation, and a harrowing pilot experience. (48:42) Overcoming Situational Depression and Heart SurgeryIndividual overcomes situational depression through determination, positive thinking, and support from podcasts and online communities. (55:10) Recovery and Positivity in Heart SurgeryMary's inspiring journey of recovery after wrist surgery, her passion for flying and running, and her unwavering optimism and determination.
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