Lewy Body Roller Coaster  Por  arte de portada

Lewy Body Roller Coaster

De: Linda and Curry
  • Resumen

  • Welcome to our podcast about living on the Lewy Body Dementia roller coaster- a podcast for Lewy Body Dementia patients and their families presented by Lewy Body patients and their families.You will hear firsthand, the ups and downs and twists and turns of Lewy Body Dementia from families directly affected as we will share our support and experiences on all things Lewy Body.lewybodyrollercoaster@gmail.com
    © 2024 Lewy Body Roller Coaster
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Episodios
  • Navigating Symptoms and Finding Joy with Ray Augusti- Part 2
    Jun 26 2024

    Welcome back to part 2 with our friend Ray .

    In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares how activities like Rocksteady Boxing have been transformative for him. We also explore various remedies for those pesky muscle cramps, including some unconventional and amusing methods. You'll leave with practical advice, heartfelt stories, and maybe even a new trick or two to try out. Join us for an episode filled with wisdom, community spirit, and a touch of humor.

    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

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    34 m
  • Navigating Symptoms and Finding Joy with Ray Augusti- Part 1
    Jun 19 2024

    Welcome Ray this week.
    In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares how activities like Rocksteady Boxing have been transformative for him. We also explore various remedies for those pesky muscle cramps, including some unconventional and amusing methods. You'll leave with practical advice, heartfelt stories, and maybe even a new trick or two to try out. Join us for an episode filled with wisdom, community spirit, and a touch of humor. Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

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    23 m
  • Jackie's Story: From Routine Procedure to Cognitive Crisis
    Jun 10 2024

    Have you ever wondered about the hidden cognitive risks tied to everyday medical procedures? Listen to our latest episode featuring Jackie Babcock-Brown, who shares her powerful journey with Lewy Body Dementia. Diagnosed at just 55, Jackie recounts how a routine colonoscopy unexpectedly led to severe cognitive complications, unraveling into a sudden and dramatic onset of Lewy Body symptoms. We emphasize the critical importance of being informed about the potential cognitive impacts of anesthesia, especially for those with pre-existing neurological conditions.
    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

    Más Menos
    50 m

Lo que los oyentes dicen sobre Lewy Body Roller Coaster

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  • 5 out of 5 stars
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    5 out of 5 stars
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Real people are giving real hope.

I am so excited at the prospect of having the film "Facing the Wind" come out soon. My husband has had LBD for a few years and I believe that education and community support is key to understanding, getting treatment, and coping with Lewy Body Dementia. I have listened and re-listened to the podcast Lewy Body Dementia Roller Coaster since about month 2. Curry and Linda have created a life changer for me and I believe for anyone who will listen. I wd rate it much higher if that was possible.

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