Episodios

  • Navigating Symptoms and Finding Joy with Ray Augusti- Part 2
    Jun 26 2024

    Welcome back to part 2 with our friend Ray .

    In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares how activities like Rocksteady Boxing have been transformative for him. We also explore various remedies for those pesky muscle cramps, including some unconventional and amusing methods. You'll leave with practical advice, heartfelt stories, and maybe even a new trick or two to try out. Join us for an episode filled with wisdom, community spirit, and a touch of humor.

    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

    Más Menos
    34 m
  • Navigating Symptoms and Finding Joy with Ray Augusti- Part 1
    Jun 19 2024

    Welcome Ray this week.
    In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares how activities like Rocksteady Boxing have been transformative for him. We also explore various remedies for those pesky muscle cramps, including some unconventional and amusing methods. You'll leave with practical advice, heartfelt stories, and maybe even a new trick or two to try out. Join us for an episode filled with wisdom, community spirit, and a touch of humor. Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

    Más Menos
    23 m
  • Jackie's Story: From Routine Procedure to Cognitive Crisis
    Jun 10 2024

    Have you ever wondered about the hidden cognitive risks tied to everyday medical procedures? Listen to our latest episode featuring Jackie Babcock-Brown, who shares her powerful journey with Lewy Body Dementia. Diagnosed at just 55, Jackie recounts how a routine colonoscopy unexpectedly led to severe cognitive complications, unraveling into a sudden and dramatic onset of Lewy Body symptoms. We emphasize the critical importance of being informed about the potential cognitive impacts of anesthesia, especially for those with pre-existing neurological conditions.
    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

    Más Menos
    50 m
  • Navigating Sleep Disturbances in Lewy Body Dementia: Practical Tips and Community Support
    May 29 2024

    This week, Curry and I share about REM Sleep Disorder and the importance of having your loved on video tape your sleep patterns.

    This episode also digs into the frustrating journey of finding effective sleep aids, featuring personal experiences with melatonin, Seroquel, Clonazepam, and CPAP machines. We discuss the challenges of distinguishing between dream states and reality, and the impact of sleep disturbances on daily life and relationships. Caregivers will find invaluable tips on tracking symptoms with checklists and journals, and the importance of providing clear evidence to doctors through videotaping behaviors. Lastly, we underscore the power of community, especially through Zoom support groups, as a vital resource for shared experiences and mutual understanding in coping with Lewy Body Dementia.
    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

    Más Menos
    33 m
  • What Would You Want Dr. to Say?
    May 15 2024

    This week we share comments from question posted in the groups on what you would have wanted the doctor who diagnosed you to tell you about LBD - more than to just get your affairs in order?

    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

    Más Menos
    32 m
  • Navigating Life with Lewy Body Dementia: Carl Ladd's Journey of Vulnerability and Resilience Part 2
    May 1 2024

    Welcome back to the fold, where the tapestry of human experience is rich and complex, especially when joined by individuals like Carl Ladd, an award-winning educator who's bravely navigating through the turbid waters of Lewy Body Dementia. With laughter and vulnerability, Carl peels back the layers of his life to reveal the onset of severe depression and other debilitating symptoms that came with his diagnosis, challenging his once high-energy existence. His story is a stark reminder that success on paper doesn't shield us from the battles within, and it's a journey we're honored to share with you, filled with the truths of walking the tightrope between professional demands and personal health.


    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

    Más Menos
    36 m
  • Navigating Life with Lewy Body Dementia: Carl Ladd's Journey of Vulnerability and Resilience Part 1
    Apr 23 2024

    Welcome back to the fold, where the tapestry of human experience is rich and complex, especially when joined by individuals like Carl Ladd, an award-winning educator who's bravely navigating through the turbid waters of Lewy Body Dementia. With laughter and vulnerability, Carl peels back the layers of his life to reveal the onset of severe depression and other debilitating symptoms that came with his diagnosis, challenging his once high-energy existence. His story is a stark reminder that success on paper doesn't shield us from the battles within, and it's a journey we're honored to share with you, filled with the truths of walking the tightrope between professional demands and personal health.

    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

    Más Menos
    33 m
  • Curry's Fall and Hospice Story
    Mar 27 2024

    Welcome back! This week, Curry shares with us about his recent medical it and how he is moving forward with his medicine and health care. Curry shares that the doctor signed him up for hospice and describes all that they are going to do to help him and his wife Linda now.

    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.


    Support the Show.

    Más Menos
    39 m