Living Well with Multiple Sclerosis By cover art

Living Well with Multiple Sclerosis

By: Overcoming MS
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  • Summary

  • Welcome to Living Well with MS, the podcast from the Overcoming MS charity. In each episode, your host Geoff Allix explores a different aspect of the Overcoming MS Program in greater depth by talking with experts and people with MS about health lifestyle changes. New episodes are published on Wednesdays and feature interviews with scientists, neurologists, fitness specialists, diet experts, stress reduction professionals. The podcast also features inspirational, real-life stories from people with multiple sclerosis following the Overcoming MS program, about the challenges and victories of managing symptoms through lifestyle modification.
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Episodes
  • Webinar Highlights: Your opportunity to ask a qualified nutritional therapist about the Overcoming MS diet with Sam Josephs | S6E8

    Webinar Highlights: Your opportunity to ask a qualified nutritional therapist about the Overcoming MS diet with Sam Josephs | S6E8
    Apr 17 2024
    In this episode, we are sharing highlights from our webinar, ‘Your opportunity to ask a qualified nutritional therapist about the Overcoming MS diet’ with Sam Josephs. Sam is a qualified nutritional therapist and Overcoming MS facilitator. In this episode, she discusses fasting patterns, tips for Overcoming MS-friendly meals on a budget and how to prevent weight loss. Keep reading for the key episode takeaways. Topics and Timestamps: 02:40 Can fasting help you reduce inflammation? 05:58 How much calcium is safe for you with high doses of vitamin D3? 08:11 Comparing benefits: flax oil supplements vs Omega-3 rich foods. 09:40 Can you have coconut or meat in the absence of Overcoming MS-friendly options? 11:25 Vitamin D2 vs D3 in fortified foods. 13:40 The link between eating dairy and osteoporosis. 16:48 The different types of saturated fats. 19:11 Can you ever eat fast food or processed foods? 22:12 Can you eat egg yolk or meat occasionally? 25:59 How much vitamin K should you have to prevent calcium buildup? 27:16 Is there a limit to the number of egg whites you can eat? 28:18 Can you eat lean meat on the Overcoming MS diet when trying to put on weight? 30:12 What minerals can you take to help with spasticity and tight muscles? 21:46 Tips for cooking Overcoming MS-friendly meals with a busy schedule. 36:48 Snacks to help you prevent weight loss on the Overcoming MS diet. 40:23 Alternatives to flax oil for Omega-3 supplementation 41:59 The benefits of a variety of whole grains for your gut bacteria 44:20 Budget tips for cooking Overcoming MS-friendly meals Selected Key Takeaways: Highly processed foods have negative health implications. 20:11 “Highly processed foods sometimes irritate the gut lining, which can affect our friendly bacterial populations. We're only just starting to understand the detrimental effects of some of these unknown food chemicals, not to mention high levels of salt, and high levels of sugar, all of which on a metabolic level are not good for us. Salt can cause excretion of calcium, which we're trying to retain. The sugars can cause metabolic issues, things like becoming overweight and obese.” A variety of whole grains is beneficial for the gut. 42:35 “It’s important not to rely too heavily on one grain or another. But to keep that variety because each grain has a different nutritional profile and will be broken down differently in the body. The more variety you have with your grains, the more you're encouraging healthy bacteria which indirectly calms MS activity so think about different rice: what about wild rice [or] the red rice? What about buckwheat? Have you tried quinoa yet?” There are multiple intermittent fasting methods to suit your lifestyle. 03:05 “Some people do the five-two diet, which involves eating normally five days of the week, and then just eating dinner on two days of the week, consuming much lower calories. You could fast overnight for 16 hours and then eat your food in a much smaller window of eight hours. It could be done as a water fast where you don't eat anything at all, and just drink water one day a week or a couple of days a month.” Want to learn more about living a full and happy life with multiple sclerosis? Sign up to our newsletter to hear our latest tips. More info and links: Sam Josephs has been featured on S1E3, S1E4, and S5E8Check out Overcoming MS-friendly recipesCreate your Overcoming MS Meal PlanRead Sam’s bioNew to Overcoming MS? Visit our introductory pageConnect with others following Overcoming MS on the Live Well HubVisit the Overcoming MS website Follow us on social media: FacebookInstagramYouTubePinterest Don’t miss out: Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us: If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS.
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    49 mins
  • Mindfulness with MS Nurse and Overcoming MS Facilitator, Sue Tibbles | S6E7

    Mindfulness with MS Nurse and Overcoming MS Facilitator, Sue Tibbles | S6E7
    Apr 3 2024
    Welcome to Living Well with MS, where we are pleased to welcome Sue Tibbles as our guest! Sue is an MS nurse and Overcoming MS facilitator who follows the Program. She is a qualified mindfulness teacher with a Master’s in Mindfulness from the University of Aberdeen. In this episode, she discusses tips for setting up a mindfulness practice, the role of stress and MS and shares some different mindfulness practices. Watch this episode on YouTube here. Keep reading for the key episode takeaways. Topics and Timestamps: 01:19 Sue’s stress-related MS diagnosis. 05:59 Navigating the difficulties of starting a mindfulness practice. 09:24 Effective ways you can settle the mind. 10:54 Practical tips for setting up your own mindfulness practice. 13:05 The role of an MS Nurse. 16:23 How to talk to your healthcare provider about the Overcoming MS Program. 18:52 Tips for when you are newly diagnosed or new to the Program. 24:51 The impact of stress in MS flares. 30:21 Formal vs informal mindfulness practices. Selected Key Takeaways: Don't stress if your healthcare professional initially dismisses the Overcoming MS Program 17:03 “I think it's a really nice opportunity for you to be able to teach [your healthcare professional about the Program]. If you come across resistance from them, I don't think there's an awful lot of point in becoming resentful about that. That's not going to achieve anything at the end of the day. There is lots of support within [the] Overcoming MS [community], if you're not getting it from your MS nurse or your neurologist. Although I think a lot of healthcare professionals are becoming better at being open about these things.” We can’t control what’s going on outside of us, but we can control our response to it 24:51 “I will regularly say to my patients, 'We can't change what's going on outside of us, we can't change that stressful situation at work, we can't change the builders coming in and messing up. We can't change any of that, but we can change our response to it.’ That's what we need to work on, and mindfulness helps with that.” There are no downsides to following the Overcoming MS Program 34:30 “When I was first diagnosed and discovered the Program, I remember thinking to myself, ‘What have I got to lose? By eating a bit more healthily, doing a bit more exercise, [and] doing a bit of mindfulness, what have I got to lose? What is there to gain?’” Want to learn more about living a full and happy life with multiple sclerosis? Sign up to our newsletter to hear our latest tips. More info and links: Read the Overcoming Multiple Sclerosis bookLearn more about Professor Jelinek’s storyListen to S5E13 Meditation tips with Professor Craig HassedFind out more about the Overcoming MS Pop-up Tour in 2024Check out one of our guided meditationsRead Sue’s bioNew to Overcoming MS? Visit our introductory pageConnect with others following Overcoming MS on the Live Well HubVisit the Overcoming MS website Follow us on social media: FacebookInstagramYouTubePinterest Don’t miss out: Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us: If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS.
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    36 mins
  • Advanced cell therapy for progressive MS with Dr Stefano Pluchino | S6E06

    Advanced cell therapy for progressive MS with Dr Stefano Pluchino | S6E06
    Mar 20 2024
    Welcome to Living Well with MS, where we are pleased to welcome Dr Stefano Pluchino as our guest! Dr Pluchino is a Professor of Regenerative Neuroimmunology at Cambridge University and has been researching stem cell therapy for progressive MS. In this episode, Dr Pluchino speaks to Geoff about what advanced cell therapy is, the success of his phase one trial and what the future of DMTs looks like indicating what people with MS may experience. Watch this episode on YouTube here. Keep reading for the key episode takeaways. Topics and Timestamps: 01:31 Dr Pluchino’s background and research into stem cell therapy for progressive MS. 02:52 The difference between types of MS. 05:09 Navigating DMT options for progressive MS. 08:40 Dr Pluchino’s advanced cell therapy research trial: The success of phase one and plans for phase two. 21:05 How advanced cell therapy compares to HSCT or bone marrow transplants. 26:02 What it means for the future of DMTs. 33:39 How you can be part of groundbreaking MS research and trials. Selected Key Takeaways: There are nuances in types of MS beyond ‘relapsing’ or ‘progressive’. 04:23 "It is becoming more complex between active and non-active types of primary and secondary progressive MS where activity is attributed to other episodes. Clinical episodes of disease or radiologically evident episodes of disease, which can be identified by the use of contrast agents at the time of the MRI. So, they are very complex very heterogenous types of disease, with or without activity, which inevitably undergo accumulation of neurological deficits.” The next generation of DMTs will target progression rather than relapses. 06:39 “What's becoming very interesting is that [over the last] few years, there is a general worldwide consensus that progressive MS is becoming and has become a clinical unmet need. The old MS world is concentrating on financing, funding and efforts towards stopping MS through the development of a new generation of DMDs which will eventually target progression rather than relapses.” The future of advanced cell therapy research will look at remyelination, reduction of inflammation and neuroprotection. 19:10 "There is space for assessing whether a proportion of the injected cells [can] differentiate in vivo into new myelin-forming cells. There is a space to assess whether some of the cells [can] increase the survival of neurons in the brain. There is space to assess whether the transplanted cells [can] reduce the type of inflammation which characterises progressive MS, which is what we call a smouldering inflammation. These highly diffuse homogeneous, low-level activations of microglia (immune cells of the central nervous system) and astrocytes (star-shaped cells that hold nerve cells in place) might be reduced by means of advanced cell therapy and the reason why I am specifically alluding to these three major biological mechanisms of disease, remyelination, reduction of inflammation and neuroprotection is because we have managed to identify each of these mechanisms in clinically relevant animal disease models in the last 25 years. So, there is [an] expectation that a clinical trial designed in a way that will allow us to establish the efficacy of the treatment will reveal what we have established already in one of these models.” Want to learn more about living a full and happy life with multiple sclerosis? Sign up to our newsletter to hear our latest tips. More info and links: Video on Early-stage stem cell therapy trial shows promise for treating progressive MSDr Pluchino’s websiteDr Pluchino’s bioIf you have progressive MS you may be eligible for the Octopus trial Learn about HSCT from Professor Richard Burt in Season 5 Episode 25Read about the Shinya Yamanaka and John Gurdon’a Nobel Winning iPSC technologyFind out more about the latest research in progressive MS from the International Progressive MS Alliance New to Overcoming MS? Visit our introductory page Connect with others following Overcoming MS on the Live Well HubVisit the Overcoming MS website Follow us on social media: FacebookInstagramYouTubePinterest Don’t miss out: Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us: If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS.
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    38 mins
Exercise & Fitness Hygiene & Healthy Living
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Profile Image for Leslie Barringer

Good information but Boring.....

This is good information but the narrator is boring and I was ready to pull my hair out by the end. She was so monotonous, no passion at all. There is no form or format, she just lists what she eats but no way to fix the dishes. Example, "I fix rice and add herbs and you can have it as leftovers the next day. This is a great idea." This is not a great idea as it is boring, and you give no ideas for herbs or spices. For me, a great idea would be fix rice, add cumin, italian seasoning, maybe some diced tomatoes, diced onions, or other diced veggies.....that would be worth listening to but fish blended with yogurt to make a dip....no thank you.

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Profile Image for Stacy

Informational

Just like with MS, everyone is different. I understand a lot of what he said. I was big in crossfit, had a trainer, I should have been healthy! I was hit with this disease like him. I had to move bc my apartment was on the 3rd floor of a historic building. It was my dreamland. I am miserable where I live now. MINDSET AND SUPPORT ARE #1! Do what works for you. I don't use the program, first I listened to. He is inspiring, deserves compensation if he is an expert. It takes someone with MS and is dedicated bc it effects themselves as well. He made a lot of sense. I am in PT 3xs a week and I quit bc it was insulting considering my knowledge. Thanks!

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