In this episode, we kick off our Season 3 guests with David Fajgenbaum who shares his extraordinary journey to cure himself from Castleman disease.

• David shares his very personal story of searching for a cure to his own disease
• He describes how having a vision for the future helped him to survive
• He insists that patients can be part of the process and can be active collaborators in the search for cures
• He pleads for a shift from an Investigator initiated model to a Community initiated model involving collaboration between researchers, clinicians and patients
• David also insists that approved drugs could be used to treat additional diseases
• He tells us about why and how he wrote a book, “Chasing My Cure” about his journey
• He describes the value that good mentors bring
• He advises to keep focused, surround yourself with good people, learn to delegate and to take important recruitment decisions
• David recommends getting as much feedback as you can from many people

He mentioned these labs, scientists, institutions and companies

• University of Pennsylvania School of Medicine : https://www.med.upenn.edu/
• Georgetown University : https://www.georgetown.edu/
• Castleman Disease Collaborative Network : https://cdcn.org/
• Castleman Disease : https://rarediseases.org/rare-diseases/castlemans-disease/
• University of Oxford : https://www.ox.ac.uk/
• National Institutes of Health (NIH) : https://www.nih.gov/
• Janet Woodcock from the FDA : https://en.wikipedia.org/wiki/Janet_Woodcock
• Brian Wallach : https://en.wikipedia.org/wiki/Brian_Wallach
• I am ALS : https://www.iamals.org/
• Frits van Rhee : https://cdcn.org/leadership-team/frits-van-rhee/ | https://uams-triprofiles.uams.edu/profiles/display/127377
• Sharon Terry : https://en.wikipedia.org/wiki/Sharon_F._Terry
• Arthur Rubenstein : https://www.med.upenn.edu/endowedprofessorships/arthur-h-rubenstein-university-professorship.html
• Benjamin Castleman : https://en.wikipedia.org/wiki/Benjamin_Castleman

To find out more about David and Every Cure visit these links
X-Twitter : @DavidFajgenbaum
Every Cure https://twitter.com/EveryCure
David’s LinkedIn https://www.linkedin.com/in/davidfajgenbaum/
Every Cure’s LinkedIn : https://www.linkedin.com/company/every-cure/
David’s Book “Chasing My Cure: A Doctor's Race to Turn Hope Into Action” : https://chasingmycure.com/

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To find out more about Renaud and Jonathan :

• Twitter : https://twitter.com/LePourpre
• LinkedIn : https://www.linkedin.com/in/renaudpourpre/
• Twitter : https://twitter.com/Epigenetique
• LinkedIn : https://www.linkedin.com/in/jonathanweitzman/%20

More about the soundtrack :
Music by Amaria - Lovely Swindler https://soundcloud.com/amariamusique/

In this episode Renaud and Jonathan share their excitement about the launch of Season 3 of The Lonely Pipette podcast. BUT this time, they are not the ones asking the questions.

💌 Subscribe and receive the next season in you mailbox

To find out more about Renaud and Jonathan :

• Twitter : https://twitter.com/LePourpre
• LinkedIn : https://www.linkedin.com/in/renaudpourpre/
• Twitter : https://twitter.com/Epigenetique
• LinkedIn : https://www.linkedin.com/in/jonathanweitzman/%20

More about the soundtrack :
Music by Amaria - Lovely Swindler https://soundcloud.com/amariamusique/

Dear Lonely Pipetters,
Season 2 has been an amazing journey, BUT Season 3 will be awesome. We are so proud to be still here, with you supporting us. Thank you! In this final episode, we take the chance to give you untold stories about Season 2 making-of, personal stories and what you can do to help us build Season 3. Don’t miss it out !

Subscribe to be updated when Season 3 starts : https://bit.ly/NLTLP

You want to support our work ? Buy us a coffee ! ==> https://www.buymeacoffee.com/lonelypipette

To find out more about Renaud and Jonathan :

• Twitter : https://twitter.com/LePourpre
• LinkedIn : https://www.linkedin.com/in/renaudpourpre/
• Twitter : https://twitter.com/Epigenetique
• LinkedIn : https://www.linkedin.com/in/jonathanweitzman/%20

More about the soundtrack :
Music by Amaria - Lovely Swindler https://soundcloud.com/amariamusique/