Episodes

  • An off day…

    An off day…
    Jul 28 2024
    I am struggling to keep it together. Video on AWOL Zebra Network on YouTube.
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    34 mins
  • No back up plan…

    No back up plan…
    Jul 27 2024
    Desperately seeking the control I lost with this illness.
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    16 mins
  • The girl in the plastic bubble…

    The girl in the plastic bubble…
    Jul 26 2024
    I feel like I should be in a plastic bubble. Trying to gain control.
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    19 mins
  • I am my own worst enemy…

    I am my own worst enemy…
    Jul 25 2024
    Will I ever learn? If I slow down and breathe. I can manage my kinasthesia! I feel stability for the first time.
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    13 mins
  • Poison ivy is winning…

    Poison ivy is winning…
    Jul 24 2024
    This is my first (and last for obvious reasons video and audio podcast. It’s time consuming living life with hEDS and the comorbidities that come with it.
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    24 mins
  • Not quite ready for prime time…

    Not quite ready for prime time…
    Jul 23 2024
    Today was one thing after another. My body is still going. And I am afraid to stop.
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    34 mins
  • Hanging out with Hannah…

    Hanging out with Hannah…
    Jul 22 2024
    Learn about Hannah. A thriving 29 year old zebra that manages her life and this illness. There are good days and bad days. She’s a go getter!
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    1 hr and 52 mins
  • I have the vapors…

    I have the vapors…
    Jul 21 2024
    A situation that would normally debilitate me. Had a very simple remedy. Breathing. Stopping. And trash TV😉🤣💙
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    13 mins