Of course approaching the one year anniversary of losing someone very important, our thoughts turn to grief. In this episode we discuss grief as it pertains to chronic illness patients and even try to apply it to how the doctor's feel/act.

We've also added a resource to every discription which is the most elaborate checklist of symptoms associated with Ehlers-Danlos. You have to school a bit past some technical jargon but the checklist is there and easy to read.

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US

Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.com

Here is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdf

If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com

Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Tis the season! What season? Struggle Bus Season! And it doesn't just pertain to Spoonies but Amberlyn and Ann discuss the reality of the struggle and some ways to manage it. Hint: supportive friends and humor.

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US

Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.com

Here is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdf

If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com

Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Both Amberlyn and Ann have some experience living in areas with severe weather and they've both gone through prepping education. While Amberlyn is much more formal with military training, Ann didn't do too shabby using using resources found at the library.
Now is a great time to be talking to your providers about getting a few extra days worth of medications in case of an emergency. Don't forget to have your shoes handy and ready to go.
And remember that part of prepping is thinking about the worst case scenario. You don't need to plan every detail in the event of a death, but it's a good idea to share basic wishes with your loved ones.

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US

Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.com

Here is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdf

If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com

Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Yes, we're a few days late, but we discussed some "Good News" that was shared on Rare Disease Day, February 29th. We'd love to hear what you think.
We also got a new mascot and are in the process of naming them. (We are all inclusive so our mascot uses they/them pronouns.) Listen in to find out who the mascot could possibly be. Big surprise: it's NOT A ZEBRA!

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US

Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.com

Here is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdf

If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com

Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Ann has experience having a service dog and Amberlyn wants to know more so why not have the discussion on the podcast, right?
You may notice the new name: Tale of Two Zebras. Amberlyn aka Mrs. Labeezy and Ann aka Elder Zebra are making this thing official so you'll be noticing our efforts to make this brainchild a reality. Like so many things involving chronic illness, it will take baby steps and time to fully reach 100% official status. Thank you for joining us on our journey. Glad you're here.

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US

Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.com

Here is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdf

If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com

Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Thank you to our special guest this episode. We had a lot of fun talking about POTS, living with chronic illness, and sharing stories. There were a lot of resources mentioned and I will be adding them to the episode description asap.
TBH: It was much harder editing the recording than I expected. It is one thing to live with health challenges, it is another to listen to others validate the experience. Listening back to the recording I was moved to tears and I need some time to process my feelings before finishing all the notes and details for reference. Thank you for your patience and understanding.
Very soon we will be doing an official intro to our "new" podcast: The Tale of Two Zebras. Amberlyn and I feel it is a better reflection of our podcast topics and discussions.

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US

Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.com

Here is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdf

If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com

Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Sleep is suppose to be restorative but for EDS Zebras, it is often every but restorative. Who knew there was an illness where sleeping can actually be painful? Pillows quickly become friends. There are also higher risks of serious issues and it is strongly recommended that sleep troubles be discussed with medical professionals.

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US

Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.com

Here is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdf

If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com

Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us. With it being the month of February and Valentines Day in the week, Mrs. Lazbeezy and Ann decided to discuss friendships and the challenges presented by being a spoon.

Here's a link to the reel that talked about 8 minute friends: https://www.instagram.com/reel/C3BM8ZkpMIG/?utm_source=ig_web_copy_link

We gave a shout out to the our TikTok creator friend, eryykc, and his brilliant life hack to remember what he needs to bring with him for the day and how to make sure those items get home. Here's the link to hear his idea from the source: https://www.tiktok.com/@eryykc/video/7332858626647854379?is_from_webapp=1&sender_device=pc&web_id=7173368752716793390

Mrs. Labeezy highlighted a Zebra "must have": handwarmers that are rechargeable, don't burn, and are highly portable. Here's a link and she is eligible for commission if you use the link: https://www.amazon.com/dp/B0CMQMYBK7?starsLeft=1&ref_=cm_sw_r_apin_dp_2DQG2WTP3K5B8D7V0KND&th=1

We're on YouTube too: https://www.youtube.com/@taleoftwozebras

Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US

Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.com

Here is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdf

If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com

Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.