I am Anne Budenberg and started on this podcast journey when I was unable to complete an article I started to write in 2019. My solution to this unfinished writing was to make a podcast, with 5 episodes on the topics I tried to explore in my writing.

This is created from three perspectives

• as a daughter
• as a healthcare professional (dentist) with some knowledge of the NHS system, and
• through the eyes of the patient

In this episode I'm speaking to Dr Andrew McDowell, founder of TPC Health.

Andrew is a psychologist, coach and leadership professional with more than 30 years experience of innovation in the health and care sector.

We are speaking about Health Coaching - what it is, and how it fits within health care interactions. How can we change the quality of the conversation we have with patients so that they are supported, and motivated to change their behaviour to improve their health. Research shows that traditional healthcare models where healthcare professionals are seen as fixers are not sufficient, but they need to be be working in partnership with patients, as enablers. Patients have the resources both internally and externally to improve their health and well-being.

Resources: 

•     A comprehensive model for personalised care  (July 2018) https://www.nationalvoices.org.uk/sites/default/files/public/event/comprehensive_model_for_personalised_care_-_james_sanderson_10_july_2018.pdf

•     Good and bad help: how purpose and confidence transform lives’ Feb. 2018 by Good Help Project . https://osca.co/publications/good-bad-help/

•     Health Coaching https://www.hee.nhs.uk/our-work/health-coaching

•     Healthy lives for people in the UK. Introducing the Health Foundations’s healthy lives strategy August 2018. https://reader.health.org.uk/healthy-lives-for-people-in-the-uk

•     Patient Activation Measure (2018)  https://www.england.nhs.uk/publication/module-1-patient-activation-measure-implementation-quick-guide/ (accessed 1/2/22)

•     Supporting people to manage their health: An introduction to patient activation. https://www.kingsfund.org.uk/publications/supporting-people-manage-their-health

•     Tools to implement supported self-management https://www.england.nhs.uk/personalisedcare/supported-self-management/supporting-tools/

•     TPC Health https://tpchealth.com/

•     What makes us healthy? An Introduction to the social determinants of health by The Health Foundation

I am Anne Budenberg and started on this podcast journey when I was unable to complete an article I started to write in 2019. My solution to this unfinished writing was to make a podcast ,with 5 episodes on the topics I tried to explore in my writing.

This is created from three perspectives

• as a daughter
• as a healthcare professional (dentist) with some knowledge of the NHS system
• through the eyes of the patient

In this episode I'm speaking to Dr Maggie Ellis, Senior Lecturer, School of Psychology and Neuroscience, University of St Andrews.

We are talking about the relationship between music and dementia, and about Dr Ellis's main research area; the use of non-verbal communication in those living with dementia, illustrated with some personal & heart-warming stories.

Useful resources for this episode:

·     Adaptive Interaction In Action

https://www.astellis.co.uk/what-is-adaptive-interaction

 ·     Alzheimer Scotland

https://www.alzscot.org/

·     Alzheimers Society

https://www.alzheimers.org.uk/

 ·     Alzheimer Europe

 https://www.alzheimer-europe.org/Ethics/Definitions-and-approaches/Other-ethical-principles/Personhood 

·     Astell , A J , Malone , B , Williams , G , Hwang , F & Ellis , M 2014 , ' Leveraging everyday technology for people living with dementia : a case study ' , Journal of Assistive Technologies , vol. 8 , no. 4 , pp. 164-176 .

 ·     Leveraging everyday technology for people living with dementia : a case study

https://research-repository.st-andrews.ac.uk/handle/10023/9954

 ·     Ramsey, A., Webb, S., & Ellis, M. (2018). Scaffolding for artistic success: comparing structured and unstructured art activity for people with dementia. Journal of Dementia Care.

https://research-repository.st-andrews.ac.uk/handle/10023/17502

I am Anne Budenberg and started on this podcast journey when I was unable to complete an article I started to write in 2019. My solution to this unfinished writing was to make a podcast, with 5 episodes on the topics I tried to explore in my writing.

This is created from three perspectives

• as a daughter
• as a healthcare professional (dentist) with some knowledge of the NHS system, and
• through the eyes of the patient

In this episode I'm speaking to Professor Brian Dolan OBE, FFNMRCSI, FRSA, RMN, RGN

Director, Health Service 360,  Honorary Professor of Leadership in Healthcare University of Salford, Manchester, Honorary President of AGILE, The Network for Chartered Physiotherapists working with older people, Honorary Adjunct Professor, Bond University, Queensland, Fellow (by Election) Faculty of Nursing & Midwifery, Royal College of Surgeons in Ireland.

Brian has a 40 year career in healthcare focusing on leadership, system redesign, culture change and patient flow. He is the originator of #EndPJparalysis and the last 1000 days, which in the last few years has resulted in multiple international mobility challenges and Global Deconditioning Summits.

We are speaking about the movement, #EndPJParalysis, and the causes and impact of deconditioning, in hospital and at home. We talk about thinking differently, and valuing patients' time -#last1000days.

Useful resources for this episode:

Short films

• Your last 1000 days

https://www.youtube.com/watch?v=kbdjhN2471c

• The last 1000 days – poem by Molly Case

https://www.youtube.com/watch?v=HynytVepxZc

• Please Answer – a short film on loneliness and social isolation

https://www.youtube.com/watch?v=fWI0RMij6Bk

Facebook pages and websites

• Last 1000 days Facebook page

https://www.facebook.com/groups/EndPJparalysis/

• Last 1000 Days website

http://www.last1000days.com

• #EndPJparalysis Summit

www.endpjparalysis.org

Youtube clips

• Why does #endPJparalysis matter?

https://www.youtube.com/watch?v=5ObkzGg4ZGY

• Brian Dolan on why patient time is the most important currency in

healthcare (March 2018, London) [34 mins]

https://www.youtube.com/watch?v=lYAraZVhkfA

• The origin of #EndPJparalysis

https://www.youtube.com/watch?v=chnchfdIBgc

Blogs

• The secret ingredients of #EndPJparalysis

https://soniasparkles.com/2018/04/07/the-secret-ingredients-to-endpjparalysis/

• #EndPJparalysis:the revolutionary moving helping frail older people

https://www.england.nhs.uk/2018/06/endpjparalysis-revolutionary-movement-

helping-frail-older-people/

Newspaper / news reports

• Arora A, Dolan B (2021) Avoiding Deconditioning in O’Hanlon S, Smith M

(Eds) A comprehensive guide to rehabilitation. London, Elsevier (4edn) (Free

book chapter)

https://eu-ireland-custom-media-prod.s3-eu-west-

1.amazonaws.com/UKMEAEU/eSample/9780702080166.pdf

• Nursing Times Editorial ‘This campaign shows nurses are leaders of change

https://www.nursingtimes.net/opinion/editors-comment/this-campaign-shows-

that-nurses-are-leaders-of-change/7024119.article

#EndPJparalysis music videos

• The ‘Dolan...

I am Anne Budenberg and started on this podcast journey when I was unable to complete an article I started to write in 2019. My solution to this unfinished writing was to make a podcast ,with 5 episodes on the topics I tried to explore in my writing.

This is created from three perspectives:

• as a daughter
• as a healthcare professional (dentist) with some knowledge of the NHS system
• through the eyes of the patient.

In this episode I’m speaking to Dr Gayle H Doherty, Senior Lecturer in Neuroscience at the School of Psychology & Neuroscience, University of St Andrews. We are going to speak about dementia and Dr Doherty's drug discovery work, what we know about the modifiable risk factors for dementia, the uptake of health technologies, and some of the current challenges for those living with dementia.

Useful References from this episode:

·     Alzheimer Scotland

https://www.alzscot.org/

·     Alzheimers Society

https://www.alzheimers.org.uk/

·     Alzheimer Europe

https://www.alzheimer-europe.org/Ethics/Definitions-and-approaches/Other-ethical-principles/Personhood

·     Genetics and A Alzheimer’s

https://www.alzheimersorganization.org/alzheimers-gene-apoe4

·     Obesity and the Ageing Brain Could play a Role in Neurodegeneration

https://www.researchgate.net/publication/51732125_Obesity_and_the_Ageing_Brain_Could_Leptin_Play_a_Role_in_Neurodegeneration

https://www.researchgate.net/publication/285202183_How_can_we_prevent_neuronal_apoptosis

https://www.researchgate.net/publication/5305276_Neuroprotective_actions_of_leptin_on_central_and_peripheral_neurons_in_vitro

·     Richard Michael https://www.youtube.com/watch?v=AvdnUefuLlI

I am Anne Budenberg and started on this podcast journey when I was unable to complete an article I started to write in 2019. My solution to this unfinished writing was to make a podcast, with 5 episodes on the topics I tried to explore in my writing.

This is created from three perspectives

• as a daughter
• as a healthcare professional (dentist) with some knowledge of the NHS system
• through the eyes of the patient

In this episode we are going to speak about my personal story of accessing, and navigating the health and social care maze. It is about our family’s experience of some of the complexities, and the challenges of healthcare when my father had a life-changing stroke, which included losing his ability to make his own decisions.

Some useful resources associated with this episode:

• Age UK

 https://www.ageuk.org.uk/information-advice/

·     Alzheimer Scotland

https://www.alzscot.org/

·     Alzheimers Society

https://www.alzheimers.org.uk/

• Chest Heart and Stroke Scotland

https://www.chss.org.uk

• Concurrent NHS and private physiotherapy

https://www.csp.org.uk/publications/concurrent-and-subsequent-treatment-advice-physiotherapists-working-nhs-and-private

·     Do not resuscitate - with Yasmeen Khan (18/5/21)

https://www.bbc.co.uk/sounds/play/m000w4s0

• Dundee Health and Social Care Partnership 

https://www.dundeehscp.com/service-information

·     #EndPJparalysis

https://endpjparalysis.org/

• How to Use Your Hearing Aid

 https://nhsforthvalley.com/wp-content/uploads/2014/02/How-to-use-your-hearing-aid.pdf

·     Marie Curie

https://www.mariecurie.org.uk

• Mental Capacity Act

https://www.nhs.uk/conditions/social-care-and-support-guide/making-decisions-for-someone-else/mental-capacity-act/

• Neurophysio Scotland contact – alongside NHS. https://neurophysioscotland.co.uk/contact-us/#wpcf7-f70-p18-o1
• Power of attorney - Office of the Public Guardian (Scotland)

On this podcast I’m going to explore our personal story about our experiences of navigating the healthcare system when Dad had a life-changing stroke. This is a daily and shocking experience shared by hundreds of families.

I’m going to talk about why families need be involved in their relatives’ healthcare, and to encourage them to ask questions, and to be informed.

By rebalancing the power dynamic between the healthcare team, the patient and family I want to discuss how we can give patients and families the confidence to feel empowered to find the right solutions and access the most appropriate care.

The family hold unique knowledge of their relatives and are key to providing the links between the patient and the healthcare system. They fill in the information gaps, knowing the patient’s norm, their personality, their likes and dislikes. They fill the void for an adult unable to speak for themselves, who can’t make or challenge decisions, or attend to their own personal care.

I will also be speaking about the relationship between music and dementia and why music is so significant to people diagnosed with dementia. Why is the brain so amazingly receptive to music, and how this musical world can be unlocked and explored.

This leads us on to talk about health coaching; what it is, and how it can empower patients to take control of their health, and to become experts in their care when faced with long term health conditions. Health coaching accepts that patients are already experts in their condition, but need the knowledge, skills and tools to unlock this potential to become active participants in their health.