In this episode of the Making Headway podcast, hosts Alison and Eryn welcome Toni Hickman, an Emmy award-winning music artist and aneurysm survivor. Toni shares her inspiring journey of overcoming two brain aneurysms and a stroke, and how these experiences shaped her identity and music career. The conversation delves into themes of disability, the societal pressures of perfectionism, and the importance of embracing one's journey. Toni discusses her Emmy-winning song and the creative process behind her lyrics, emphasizing the power of music as a form of therapy and expression. The episode concludes with a reflection on the beauty of diversity and the value of every individual's story.

Keywords

Toni Hickman, disability, music, aneurysm survivor, empowerment, mental health, perfectionism, creativity, resilience, Emmy award

Takeaways

· Toni Hickman is an Emmy award-winning music artist and aneurysm survivor.

· She experienced two brain aneurysms and a stroke at a young age.

· Toni's journey highlights the impact of disability on identity and self-worth.

· The concept of perfection is an illusion that affects many people.

· Embracing life after disability can lead to greater appreciation for oneself and others.

· Toni's music serves as a powerful form of expression and therapy.

· The creative process for Toni's songs often feels channeled from a higher energy.

· Lyrics can convey deep messages about resilience and self-acceptance.

· Everyone has value, regardless of their circumstances or challenges.

· Toni encourages listeners to find beauty in diversity and to learn from every individual.

Sound Bites

"Perfection is the illusion."

"You can learn from anyone."

"Everyone in life has value."

"I will never stop believing in me."

"It just came out through me."

"Beauty's in many different forms."

Chapters

00:00 Introduction to Toni Hickman

01:06 Toni's Journey with Aneurysms

04:16 The Impact of Disability on Identity

09:43 Perfection as an Illusion

13:18 Embracing Life After Disability

17:08 The Emmy-Winning Song and Its Message

20:08 The Creative Process Behind the Music

23:19 The Power of Lyrics and Their Meaning

27:37 Finding Beauty in Diversity

28:35 Connecting with Toni and Her Work

Reach out to

Toni’s music is on all major streaming platforms or at tonihickman.com

Toni Hickman on all the socials: @therealtonihickman

Apple podcasts: Toni Hickman Show

Eryn on IG @eryn_makingheadwaypodcast

Alison on IG @alison_maknigheadwayodcast

MHP on IG @makingheadwaypodcast

Go to our website www.makingheadwaypodcast.com for full show notes and resources

Support us at

Patreon

Donate section on

In this episode of the Making Headway Podcast, hosts Alison and Eryn welcome back Nia Renee, who shares her journey through multiple brain surgeries and the impact of chronic illness on her relationships. Nia discusses her transition from being a brain injury survivor to a relationship coach, focusing on helping others navigate the complexities of relationships affected by trauma and chronic illness. The conversation highlights the importance of medical advocacy, personal growth, and the challenges faced by those living with chronic conditions. In this conversation, the speakers delve into the complexities of navigating medical trauma, the importance of self-advocacy, and the emotional toll of job loss. They discuss the significance of journaling as a tool for self-reflection and the necessity of setting boundaries to protect oneself from toxic relationships. The dialogue emphasizes the power of vulnerability and the importance of finding supportive relationships that uplift rather than drain energy.

Keywords

brain injury, recovery, relationship coaching, chronic illness, narcissistic abuse, medical advocacy, emotional healing, personal growth, medical trauma, self-advocacy, job loss, identity, journaling, boundaries, toxic relationships, support systems, chronic illness, empowerment

Takeaways

· Nia has undergone six brain surgeries due to Chiari 1 malformation and idiopathic intercranial hypertension

· Chronic illness can significantly impact personal relationships.

· Medical gaslighting is a common issue for patients with rare conditions.

· Nia's husband plays a crucial role in advocating for her health.

· Nia transitioned to relationship coaching to help others with similar experiences.

· The importance of having proper medical credentials as a coach.

· Nia's journey includes confronting her past relationships and trauma.

· Building a supportive community is vital for recovery.

· Nia emphasizes the need for self-advocacy in healthcare settings.

· Personal growth often comes from confronting difficult experiences. Advocating for oneself is crucial in the face of medical trauma.

· Job loss can significantly impact one's identity and sense of purpose.

· Journaling serves as a powerful tool for self-reflection and understanding triggers.

· Setting boundaries is essential for mental health and well-being.

· Recognizing toxic relationships is key to personal growth and healing.

· Support systems play a vital role in recovery and self-empowerment.

· It's important to prioritize self-care and personal needs.

· Documenting experiences can provide clarity and validation.

· Vulnerability can lead to stronger, more authentic relationships.

· Everyone deserves to feel supported and valued in their relationships.

Sound Bites

"Relationships are a big part of our recovery."

"I started having the strangest symptoms."

"I decided to bet on myself"

"You have to document everything"

"I gaslit myself for so long"

"I would rather spend my life alone"

"It's worth cutting out the shit"

"I married someone that has protected me"

"You deserve to feel that"

"You have to prioritize...

Women experience brain aneurysms at a higher rate than men. Are we alone in wondering what is behind this disparity? NO! This week, we welcome Rosalind Lai MD, a neurosurgeon performing research sponsored by a grant through The Bee Foundation. Dr. Lai and her team are trying to understand the role of the X chromosome in the development of cerebral aneurysms. Understanding this linkage could lead to the discovery of genetic markers for cerebral aneurysms and give insight into the gender differences we see in this condition. The hope would be that eventually we can test for genetic markers and provide treatments that turn down the expression of these genes which would lead to the prevention of brain aneurysms. Join Eryn, Alison, Rosalind and Erin Kreszl of The Bee Foundation (TBF) as we discuss TBF’s fourth pillar—research. Listen to learn more about brain aneurysms and this exciting research project!

Keywords

The Bee Foundation, brain aneurysm, research, gender differences, genetics, prevention, awareness, support, advocacy

Takeaways

· The Bee Foundation supports research, advocacy, awareness, and support for brain aneurysm prevention.

· Brain aneurysms can be asymptomatic until they rupture, making awareness crucial.

· Women are at a higher risk for developing brain aneurysms compared to men.

· This research is focused on understanding the genetic and hormonal factors that contribute to aneurysm risk in women.

· The Bee Foundation has funded over $600,000 in research grants over the past 11 years.

· Genetic research aims to identify specific genes that may increase aneurysm risk.

· Understanding the role of the X chromosome could provide insights into gender differences in aneurysm development.

· Lifestyle factors like smoking and hypertension also play a significant role in aneurysm risk.

· The complexity of aneurysm development makes it a challenging area for research and prevention.

· Community support and engagement are vital for advancing research and awareness efforts.

Sound Bites

"We have four main program areas that we support."

"What is an aneurysm?"

"We want to find these targets."

"Aneurysm is a multi risk factor disease."

Chapters

00:00 Introduction to the Bee Foundation and Its Mission

03:11 Understanding Brain Aneurysms

06:10 Research Focus: Gender Differences in Aneurysms

09:50 The Role of Genetics in Aneurysm Development

19:30 Future Directions in Aneurysm Research

26:38 Engagement and Support from the Community

Reach out to

The Bee Foundation https://www.thebeefoundation.org/

Email: info@thebeefoundation.org

Rosalind, call 716-218-1000

Eryn on IG @eryn_makingheadwaypodcast

Alison on IG @alison_maknigheadwayodcast

MHP on IG @makingheadwaypodcast

Go to our website www.makingheadwaypodcast.com for full show notes and...

Join Cody Bryant, a brain injury survivor, as he shares his recovery journey, including his accident in Spain, challenges with care, and neuro rehab experience. Cody discusses the changes in his personality, relationships, and emotional regulation post-injury. He emphasizes self-care strategies like meditation and explores topics such as diet, supplements, TMS, physical therapy, and navigating the healthcare system. Cody and Eryn also highlight the importance of community support and vulnerability in the healing process.

Keywords

brain injury, recovery, challenges, care, personality changes, relationships, emotional dysregulation, self-care, meditation, brain injury, rehabilitation, diet, nutrition, supplements, grounding, transcranial magnetic stimulation, TMS, physical therapy, healthcare system, community, vulnerability

Takeaways

· Brain injury survivors often face challenges in receiving proper care, especially when abroad.

· Personality changes and emotional dysregulation are common after a brain injury, and it can be difficult for loved ones to adjust to these changes.

· Self-care is crucial for brain injury survivors, and finding strategies like meditation can help manage the effects of the injury.

· Social engagement can be draining for brain injury survivors, and it's important to find a balance between pushing oneself and avoiding brain fatigue.

· Diet and nutrition play a significant role in brain injury recovery, but healthcare professionals often overlook this aspect.

· Supplements and grounding techniques can also support brain injury recovery.

· Transcranial magnetic stimulation (TMS) may improve social stamina and have positive effects on depression and PTSD.

· Neuro IFRAH is a systematic approach to physical therapy that can help regain motor function after a brain injury.

· The healthcare system often fails to recognize the long-term nature of brain injury recovery and the need for ongoing support.

· Sharing experiences and being part of a supportive community can provide motivation and a sense of purpose in the recovery journey.

Sound Bites

"I thought everyone was trying to kill me and I thought they were trying to steal my genetics."

"I was ripping out my IV and catheter constantly."

"People closest to me basically had to grieve the person I used to be."

"I started reading that book and that was kind of my initial start of recognizing that nutrition played a big role in recovery."

"I do like a urine test every morning to make sure I'm in ketosis."

"I wear this helmet that puts these electromagnetic waves through my brain for anywhere from 30 minutes to an hour every day."

Chapters

00:00 Introduction and Apology for Guest Absence

01:07 Guest Introduction: Cody Bryant

01:39 Cody's Accident in Spain and Severe Traumatic Brain Injury

03:42 Challenges in Receiving Proper Care

05:18 Fear and Delirium in the ICU

08:35 Transfer to Neuro Rehab and Limited Stay

10:08 Difficulties in Recognizing Brain Injury

11:49 Struggling with Identity and Personality Changes

14:29 Impact on Relationships and Grieving the Old Self

17:39 Emotional Dysregulation and Mood Swings

19:23 Navigating Relationships and Understanding Triggers

21:23 Using Meditation as a Reset and Self-Care Strategy

23:25 Balancing Pushing Oneself and Avoiding Brain Fatigue

26:52 The Role of Diet and Nutrition

29:29 Supplements and Grounding...

In this episode of the Making Headway Podcast, Eryn sits down with stroke survivor and advocate, Ralph Cortese, to dive deep into the critical questions every stroke survivor should be asking their healthcare team. From navigating the maze of medical care to understanding insurance and case management, Ralph shares his personal journey and expert insights on overcoming the challenges of stroke recovery.

This conversation explores the key elements of healing, from rehabilitation and mental health to community support and dietary considerations. Discover the importance of advocacy, asking the right questions, and building a support system that can make all the difference in your recovery journey.

Tune in to hear Ralph’s powerful message about hope, resilience, and the tools that can help stroke survivors reclaim their lives. Whether you're recovering from a stroke or supporting someone who is, this episode is packed with practical tips, emotional support, and expert advice you won’t want to miss.

Keywords

brain injury, stroke recovery, advocacy, mental health, rehabilitation, support groups, survivor stories, healthcare, patient empowerment, community support, stroke recovery, insurance case management, stroke prevention, medication management, dietary needs, paralysis recovery, daily living tools, patient advocacy

Takeaways

· Advocacy is crucial for brain injury survivors.

· Understanding the type of stroke can guide recovery.

· Patients should feel empowered to ask questions.

· Mental health support is essential post-stroke.

· Community and peer support can significantly aid recovery.

· Rehabilitation specialists play a vital role in recovery.

· Social workers can provide necessary resources and support.

· Life coaching can help set and achieve recovery goals.

· It's important to know the causes of your stroke for lifestyle changes.

· Finding a supportive community can enhance mental health.

· Get a case manager from your insurance company for support.

· Understanding risk factors for another stroke is crucial.

· Always call an ambulance if you suspect a stroke.

· Be informed about your medications and their side effects.

· Dietary needs may change after a stroke; ask about them.

· Recovery from paralysis can take time; seek appropriate therapies.

· There are tools available to assist with daily living tasks post-stroke.

· Asking questions is vital for effective communication with healthcare providers.

· Keep a journal of questions and symptoms for doctor visits.

· Utilize online portals to communicate with your healthcare team.

Sound Bites

"You have to ask what type of stroke you had."

"Social workers can change everything."

"Life coaching can help you set better goals."

"Find your tribe."

"Don't take the chance. Call an ambulance."

"What medications do I need?"

"Will I need a special diet?"

"How long does this paralysis last?"

"There's probably a brace for that."

Chapters

00:00 Introduction to the Making Headway Podcast

01:01 Ralph Cortese's Stroke Journey

03:51 The Importance of Advocacy in...

Jim Scott, a traumatic brain injury survivor, shares his journey of recovery, detailing the physical and cognitive challenges, including memory loss and expressive aphasia. He also discusses the emotional hurdles of navigating relationships and disclosing his injury, maintaining a positive attitude and sense of humor throughout. Jim talks about his book, More Than a Speed Bump, and his work as a speaker raising awareness about brain injuries. He emphasizes the importance of support from organizations like the Krempels Center and the role pets have played in his healing. Jim is also involved in his family’s pet food business, Rawz, which donates all its profits to brain and spine injury nonprofits and to training service dogs. He is available for speaking engagements to share his inspiring story.

Keywords

traumatic brain injury, recovery, challenges, physical effects, cognitive effects, memory loss, expressive aphasia, dating, disclosing, positive attitude, sense of humor, disability, brain injury, adaptation, challenges, emotional struggles, book, speaking engagement, Krempel Center, support, pet food business, charity

Takeaways

· Traumatic brain injury can have both physical and cognitive effects, including memory loss and expressive aphasia.

· Disclosing a brain injury while dating can be a personal decision, but it can also help potential partners understand and support you better.

· Maintaining a positive attitude and a sense of humor can be helpful during the recovery process.

· Recovery from a brain injury can be a slow and tedious process, but with the right support and therapy, significant progress can be made.

· Brain injury survivors may experience fatigue and have to manage their energy levels carefully.

· The physical effects of a brain injury, such as weakness and limping, can sometimes serve as visible reminders of the injury. Living with a disability can be challenging, especially when others misunderstand your abilities.

· Writing and speaking about your experience can be a therapeutic way to process and share your story.

· Support from organizations like the Krempels Center can provide a sense of community and help with rehabilitation and recovery.

· Pets can play a significant role in the healing process and provide emotional support.

· Finding ways to give back and make a positive impact can be empowering and fulfilling.

Chapters

00:00 Introduction and Background

01:08 The Impact of a Family Member's Spinal Cord Injury

02:05 Jim's Own Traumatic Brain Injury

03:21 Recovery and Memory Challenges

06:15 Physical Rehabilitation and Progress

07:42 Life After Rehabilitation

08:57 Cognitive Effects and Acceptance

10:21 Advocating for Physical Improvements

11:28 Disclosing Brain Injury in Dating

13:13 The Fatigue Factor

14:16 Dating Challenges and Funny Stories

16:47 Navigating Disclosure of Brain Injury

18:09 Misconceptions About Brain Injury

19:38 Living with a Disability

20:40 Writing and Speaking About My Experience

22:20 The Power of Support: The Krempel Center and Community

25:01 The Healing Power of Pets

31:13 Giving Back: The Impact of the Family Pet Food Business

Reach out to

Jim Scott email jim@morethanaspeedbump.com

Rawz dog and cat food

Join Alison and Tymiak Hawkins, a courageous brain hemorrhage survivor, as he opens up about his remarkable journey of recovery and personal transformation. After a life-altering stroke, Ty redefined his priorities and mindset, unlocking a deeper sense of purpose and potential. In this inspiring conversation, Ty shares how a strong support system, discovering your 'why,' and practices like breathwork, visualization, and positive affirmations played a key role in his healing. His story is a powerful reminder of the resilience of the human spirit and the light that can emerge even in the darkest times. Tune in today and get ready to be inspired!

Summary

In this conversation, Ty Hawkins and Alison discuss the importance of mindset and perspective in overcoming challenges and finding gratitude in everyday life. They emphasize the need to shift from a negative mindset to a positive one and to appreciate the good moments in each day. They also discuss the role of spirituality in their healing journeys and the importance of listening to God's guidance. Ty shares his plans for rebranding his book and future projects, including a trilogy that explores the mind, body, and spirit. Overall, the conversation highlights the power of acceptance, gratitude, and personal growth.

Keywords

brain hemorrhage, recovery, personal growth, priorities, mindset, purpose, potential, support system, 'why', breath work, visualization, positive affirmations, resilience, mindset, perspective, gratitude, spirituality, healing, acceptance, personal growth

Takeaways

A traumatic experience can lead to personal growth and a shift in priorities.

Having a strong support system and a clear 'why' can help navigate through difficult times.

Practicing breath work, visualization, and positive affirmations can aid in healing and personal development.

Finding light and beauty in brokenness can lead to a deeper understanding of oneself. Shift from a negative mindset to a positive one and appreciate the good moments in each day.

Listen to God's guidance and trust that you are built for the challenges you face.

Acceptance and gratitude are key to finding peace and fulfillment in life.

Embrace personal growth and continue to learn and evolve.

Find inspiration in the stories and journeys of others.

Sound Bites

"We're all broken, but there's still beauty in things that are broken."

"Out with the bad, in with the good."

"You don't know what you need if you don't understand what you have right now."

"I have bad thoughts sometimes. Not all my thoughts are good and I honor them. I try to understand where they come from. And therefore then I try to shift my mindset to something positive."

"Was your whole day bad or were just a few moments of your day bad? So let's do a review of what's good happened, what bad happened. And let's really see if the day was good or bad or not."

"Maybe I should be grateful that I have $80 to pay for breakfast or I was, I had, you know, I was fortunate enough that I didn't have to do that."

Chapters

00:00 Introduction and Ty's Brain Hemorrhage

03:00 The Impact of the Stroke and Discovering a New Purpose

08:01 Appreciating the Present and Embracing a Positive Mindset

13:03 The Power of a Strong Support System

17:56 Self-Reflection and Healing Through Breath Work

22:47 Visualizing a Better Future and Embracing Brokenness

25:21 The Power of Perspective and Gratitude

30:08 Spirituality and Healing

35:34 Acceptance and Personal Growth

38:48 Future Projects and Inspiring Others

Reach out to

Tymiak Hawkins on IG

In this episode of the Making Headway Podcast, host Eryn speaks with Bryce Daly, a stroke and aneurysm survivor who shares his incredible journey from being a promising student athlete to navigating the challenges of recovery and living with aphasia. Bryce recounts the traumatic experience of his stroke, the subsequent coma, and the long road to rehabilitation. He discusses the emotional and physical hurdles he faced, the importance of support from family and friends, and offers valuable advice for others dealing with similar challenges. The conversation highlights the resilience of the human spirit and the power of community in recovery.

Keywords

brain injury, stroke survivor, aphasia, recovery, support, resilience, mental health, community, rehabilitation, survivor story

Takeaways

· Bryce had a 5% chance for survival after his stroke.

· Recovery from a stroke can be a long and challenging journey.

· Aphasia can lead to feelings of frustration and isolation.

· Support from family and friends is crucial during recovery.

· It's important to advocate for oneself in social situations.

· Memory can be affected by brain injuries, but it can also improve over time.

· Engaging in physical therapy is essential for regaining strength and mobility.

· Community support can make a significant difference in recovery.

· Don't give up on communication; progress takes time and patience.

· Sharing experiences can help others feel less alone in their struggles.

Sound Bites

"I was in a coma for weeks."

"Don't give up."

"I can't remember everything."

"I love my memory."

"I can remember everything."

Chapters

00:00 Introduction to the Making Headway Podcast

00:47 Bryce's Survivor Story: From Athlete to Stroke Survivor

06:03 The Journey Through Coma and Recovery

11:49 Living with Aphasia: Challenges and Triumphs

18:00 Advice for Others with Aphasia and Brain Injuries

24:10 Community and Support: Reaching Out for Help

Reach out to

Bryce on IG @bryceweekly

Eryn on IG @eryn_makingheadwaypodcast

Alison on IG @alison_maknigheadwayodcast

MHP on IG @makingheadwaypodcast

Go to our website www.makingheadwaypodcast.com for full show notes and resources

Support us at

Patreon

Donate section on our website.