• Navigating the Journey of Parenting Children with Autism and Congenital Heart Defects: A Heartfelt Conversation and Advocacy

  • Jul 4 2023
  • Length: 41 mins
  • Podcast

Navigating the Journey of Parenting Children with Autism and Congenital Heart Defects: A Heartfelt Conversation and Advocacy

  • Summary

  • Send us a text

    As a heart mom myself, I know firsthand the unique challenges that come with raising a child with both a congenital heart defect and autism. That's why I invited Melanie Letzer and Kelly Blumenthal to join me for a candid conversation about their experiences navigating this complex journey. Together, we discuss the importance of trusting your instincts, seeking early intervention, and finding the right support system for your family.

    In this heartfelt episode, we explore the challenges of getting a diagnosis and the critical role of having an IEP in place to support our children. We share our experiences with ABA therapy during the pandemic and how it has helped us better understand our children's behavior. We also discuss the importance of connecting with other parents for emotional and practical support, and how tenacity and a willingness to try different approaches are essential when it comes to finding the right program for your child.

    Our journey as parents has shown us the power of advocacy within the congenital heart community. Throughout this episode, we emphasize the need for early intervention, support, and utilizing trusted medical resources to provide the best help for our children. By sharing our experiences, we hope to inspire and empower you to become an advocate for the congenital heart community, and ensure that our neurologically and cardiac-challenged children receive the care and attention they deserve.

    Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!

    Support the show

    Anna's Buzzsprout Affiliate Link

    Baby Blue Sound Collective

    Social Media Pages:

    Apple Podcasts
    Facebook
    Instagram
    MeWe
    Twitter
    YouTube
    Website

    Show more Show less
activate_WEBCRO358_DT_T2

What listeners say about Navigating the Journey of Parenting Children with Autism and Congenital Heart Defects: A Heartfelt Conversation and Advocacy

Average customer ratings

Reviews - Please select the tabs below to change the source of reviews.