Sharing the Hope By cover art

Sharing the Hope

By: The Micah Mason Foundation
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  • Summary

  • Every 15 minutes in America a child is born with Congenital Heart Disease. These diseases range from those that are routinely surgically reparable, to those that remain uncured. For parents and patients living with CHD the challenges can sometimes seem unsurmountable. But there is a great deal of hope. Join us as we share with you the efforts underway to develop long term solutions and cures for complex CHDs. Join us as we share the hope.
    © 2023 The Micah Mason Foundation
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Episodes
  • Sharing the Hope with Tyler Sajdak

    Sharing the Hope with Tyler Sajdak
    Jul 23 2024
    Tyler Sajdak (Shy-dock) is a 30 year old HLHS patient. He had three Open Heart Surgeries at Mott Children’s Hospital in Ann Arbor, MI. His family moved to Iowa when he was 3 and he began seeing a cardiology team at what is now Children’s Nebraska in Omaha, MI. He grew up involved in as many sports as he could play, eventually lettering in tennis in high school and playing baseball through his sophomore year, and performing in the band and the forensics team. He graduated from Calvin University in Grand Rapids, MI in 2016 with a degree in political science. In 2018, he met the group that would found Single Ventricle Patient Day at the NPC-QIC/FON Fall Learning Session that year. He has been helping plan SVPD since then. Tyler is currently getting his masters degree from the University of Pittsburgh in Higher Education and is working for the University of Pittsburgh’s Physician Assistant program as an academic administrator.
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    26 mins
  • Sharing the Hope with Erin Borkowski

    Sharing the Hope with Erin Borkowski
    May 22 2024
    Join us as we share the hope with Erin Borkowski. Erin is a parent of a child with Hypoplastic Left Heart Syndrome (HLHS) and founder of Beats for Bella, a non-profit organization that raises money to support research for cures for HLHS. Erin also works for Heart Works as an engagement manager, working with them to try and cure HLHS and other server congenital heart defects.
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    23 mins
  • Sharing the Hope with Richard James

    Sharing the Hope with Richard James
    Apr 22 2024
    Join us as we share the hope with Richard James. Richard is a parent of an adult who has single ventricle physiology and is the Parent/Patient Director sitting on the Board of the Fontan Outcomes Network. He has been involved in the world of collaborative health in the HLHS community going on nine years and was asked to join the board of FON last year to replace the seat vacated by Diane Pickles.
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    55 mins
Physical Illness & Disease Hygiene & Healthy Living Personal Success
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