The Chiari Champion

By: Noah Forman
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  • Summary

  • Are you someone, or have a loved one, with Chiari Malformation, Syringomyelia, or Ehlers Danlos syndrome. Searching for a community that will raise some questions, find some answers, and share some humor and personal experiences in a fun and engaging forum? Welcome to The Chiari Champion, i’m Noah Forman, and this podcast’s purpose is to raise awareness, seek solutions, and share our stories so that we can grow, heal, and bond - to live life to its fullest and find strength in our purpose. So join me on this journey, where i’ll be joined by special guests, medical experts, innovative thinkers, and prominent voices in the field. The Chiari Champion…let’s start conquering each week…together. Follow us now on Apple Podcasts, Spotify, or whenever you enjoy your shows.
    2022
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Episodes
  • Ep. 17 - Funny Mother Tucker: from Nurse to Patient

    Ep. 17 - Funny Mother Tucker: from Nurse to Patient
    Jan 1 2024

    Beth Tucker, a 24-year survivor of Chiari, Syringomyelia, and EDS talks about her diagnosis before the digital age, and how her career as a nurse prepared her for her journey as a patient. Beth speaks on self-advocacy, even when unable to stand up or walk. Determined to not be defined by a diagnosis, she uses her own coping strategies of humor and storytelling to create a version of herself, separate from her life as a patient. Starting on TikTok, she grew to over 10k followers and became a stand-up comedian (even featured in a recent movie!). Make sure to tune in to this episode to learn more about Beth and her fascinating life of overcoming adversity. 
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    34 mins
  • Ep. 16 - From Setbacks to Comebacks: Sharing Thoughts, Finding Hope

    Ep. 16 - From Setbacks to Comebacks: Sharing Thoughts, Finding Hope
    Oct 26 2023

    Support group (join “The Chiari Champion (Support & Podcast)” and follow “@the_chiari_champion” on Instagram for episode drop dates and sneak peeks)

     

    The comeback is stronger than the setback

     

    Life in Three Acts

     

    Being the helper / receiving help

     

    Pouring from an empty cup

     

    Don’t keep moving the couch by yourself

     

    We ask the people in the Chiari Champion Facebook group:

     

    1. What do you want to say to others facing CM and related disorders?

     

    2. What is the hardest part of having CM or a related disorder?

     

    3. What is something you want the world to know about CM and related disorders?

     

    4. What is a topic you want to hear a tangent about?

     

    5. How has chronic illness made you think about your childhood?

     

    Flare-up box

     

    Chiari Malformation Zero

     

    My body chose violence

     

    Josh Pray (comedian)

     

    Sit with Warriors, the conversation is different

     
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    27 mins
  • Ep. 15 - Empowerment and Connection: Navigating Life's Challenges with Chiari Malformation and Related disorders

    Ep. 15 - Empowerment and Connection: Navigating Life's Challenges with Chiari Malformation and Related disorders
    Oct 14 2023

    “In this episode Noah will explore the following topics, make sure to hear about the Pain Voice, Toxic positivity, and the bystander effect! 

    Quote of the day!

    Best practices in decision making 

    Chiari decompression calculator

    How to view chances in life

    How to fight self negative talk (Christie Cox)

    What the pain voice is and how to fight it (Christie Cox)

    The connection between the mind and body

     The power of being present in the moment 

    Toxic positivity

    How to play your cards to win

    Fostering relationships (Kristin Means)

    Bystander effect!

     
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    28 mins
Biographies & Memoirs Physical Illness & Disease Hygiene & Healthy Living Social Sciences
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