• S2E3: Phyllis Foxworth & Dr. Victor Sung
    Jun 11 2024

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    In this episode, HDSA's President & CEO Louise Vetter is joined by Phyllis Foxworth and Dr. Victor Sung to chat about the changing landscape of research.

    Phyllis is the Senior Manager, Advocacy at HDSA

    Dr. Sung is the Director of the HDSA Center of Excellence at The University of Birmingham, Alabama, and the former chair of the HDSA Board of Directors.


    To learn more about Huntington's disease, please visit HDSA.org.

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    Don't forget to follow us on social media!

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    38 mins
  • S2E2: Leora Fox, PhD & Kelly Andrew Part 2
    May 8 2024

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    In this episode, HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew to chat about Somatic Instability and how to get involved in research opportunities.

    Leora is the Assistant Director of Research and Patient Engagement at HDSA.

    Kelly is the Coordinator of Research and Mission Programs at HDSA.


    To learn more about Huntington's disease, please visit HDSA.org.

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    39 mins
  • S2E1: Leora Fox, PhD & Kelly Andrew
    Apr 18 2024

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    In this episode HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew.

    Leora is the Assistant Director of Research and Patient Engagement at HDSA.

    Kelly is the Coordinator of Research and Mission Programs at HDSA.


    To learn more about Huntington's disease, please visit HDSA.org.

    Don't forget to follow us on social media!

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    42 mins
  • Episode #3: Maryann Emerick, Dr. Jim Gusella and Dr. Marcy MacDonald
    Mar 30 2023

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    In this episode HDSA's President & CEO Louise Vetter is joined by MaryAnn Emerick; Dr. Jim Gusella and Dr. Marcy MacDonald.

    Maryann is HDSA's Manager, Youth & Community Services and an HD family member.

    Dr. Gusella is a Professor of Neurogenetics at the Department of Genetics at Harvard Medical School.

    Dr. MacDonald is a Professor of Neurology at Mass General Hospital.


    To learn more about Huntington's disease, please visit HDSA.org.

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    49 mins
  • Episode #2: Chris Cosentino & Robi Blumenstein
    Feb 28 2023

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    In Episode #2, Louise Vetter is joined by Chris Cosentino & Robi Blumenstein.

    Chris Cosentino is HDSA's Director of Marketing & Communications and has been with the Society since 2014.

    Robi Blumenstein is President of CHDI and in 2002 organized CHDI Management to provide management services to non-profit organizations engaged in Huntington’s disease research.

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    54 mins
  • Episode #1: Arik Johnson & Teresa Srajer
    Jan 26 2023

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    In this episode HDSA's President & CEO Louise Vetter is joined by Arik Johnson, PsyD and Teresa Srajer. They discuss the launch of the new HDSA Podcast, the 38th Annual HDSA Convention and a behind-the-scenes look at the Huntington's Disease Society of America.

    Dr. Johnson is HDSA's Chief Mission Officer and former Chair of HDSA's Board of Trustees.

    Teresa is an HD family member, long-time volunteer and HDSA's newly appointed Chair of HDSA's Board of Trustees.

    To learn more about Huntington's disease, please visit HDSA.org.


    Don't forget to follow us on social media!

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    38 mins