How can personal experiences shape professional practices in community services?

In this episode, Jess Ngaheu welcomes Kay Reeves, who brings a wealth of experience as a Community Support Specialist Manager and Psychosocial Recovery Coach/Mentor at Gypsy Support Services. Kay discusses how her role as a mother to a child with cystic fibrosis and her professional background influence her approach to community service and support.

Key takeaways

• Personal Journey: Kay discusses the challenges of parenting a child with cystic fibrosis, emphasizing the importance of community support and personal resilience.
• Professional Insights: She explores her multifaceted role in community services, stressing the value of empathy and teamwork.
• Challenges and Rewards: Kay addresses the emotional challenges of her work and her strategies for maintaining a healthy work-life balance.
• Psychosocial Recovery: She outlines her approach to helping clients reintegrate into the community after hospitalization.
• Medical Research Impact: Kay highlights her daughter's involvement in research studies for cystic fibrosis and their significant impact on health outcomes.

Quotes:

• "I like to call myself a problem solver in the community." - Kay Reeves
• "Every day you can learn something new from a client." - Kay Reeves
• "It's not about solving all the problems; it's about being there and supporting the journey." - Kay Reeves
• "Awareness and empathy are key in making a difference in the lives of those we serve." - Kay Reeves

To learn more about Maternal Grounding and to book Pregnancy Massage, Postpartum Massage, and Baby Massage, visit https://maternalgrounding.com.au/services/

Join our supportive community on Facebook: "Birth Trauma By Maternal Grounding" https://www.facebook.com/groups/1012299449213573

Connect with us on social media:

- Instagram: https://www.instagram.com/maternalgrounding/

- Instagram: https://www.instagram.com/littlesuperheroes_/

- Facebook: https://www.facebook.com/maternalgrounding

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6

For inquiries, guesting opportunities, or collaborations, reach out to us at hello@maternalgrounding.com.au

Have you ever wondered how you can better support a child with learning challenges? Today, we dive deep into this crucial topic with a very special guest, Dr. Emily Levy. Dr. Levy has dedicated her life to helping children with learning disabilities reach their full potential. With a background deeply rooted in special education and a passion for individualized learning, she has founded EBL Coaching to provide specialized tutoring that makes a real difference.

In this episode, we explore Dr. Levy's journey, the innovative methods her team uses, and practical tips for parents and educators. Whether you’re a parent of a neurodivergent child, an educator looking for effective strategies, or simply someone interested in learning more about special education, this episode is packed with valuable insights and inspiration.

ABOUT the guest:

Dr. Emily Levy is the founder and director of EBL Coaching, a specialized tutoring program that offers individualized one-on-one home, virtual, and on-site instruction using research-based, multi-sensory techniques. Inspired by her mother’s dedication to special education, Dr. Levy has created a program that helps children around the world thrive academically.

Key Takeaways:

• Dr. Levy’s journey
• Support for special education:
• Common misconceptions about children with learning challenges
• Proper teaching methods can help them achieve significant success.
• Advocating for Children and how communication with teachers and service providers is essential.
• Practical tips for managing homework
• Targeted training and professional development in research-based methods

Quotes:

• “Teaching children in a way that suits their learning style can make a world of difference.”
• “Parents usually have a good intuition about when their child is struggling.”
• “Tutoring should be seen as a gift, similar to having a coach for sports.”
  
  For more information on EBL Coaching and their programs, visit https://eblcoaching.com/dr-emily-levy/. Follow them on Facebook @EBLCoaching

To learn more about Maternal Grounding and to book Pregnancy Massage, Postpartum Massage, and Baby Massage, visit https://maternalgrounding.com.au/services/

Join our supportive community on Facebook: "Birth Trauma By Maternal Grounding" https://www.facebook.com/groups/1012299449213573

Connect with us on social media:

- Instagram: https://www.instagram.com/maternalgrounding/

- Instagram: https://www.instagram.com/littlesuperheroes_/

- Facebook: https://www.facebook.com/maternalgrounding

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6

For inquiries, guesting opportunities, or collaborations, reach out to us at hello@maternalgrounding.com.au

How do you navigate the intense emotional and medical complexities of caring for a child with serious health issues?

In today's episode of the Jess Ngaheu Podcast, we dive back into the deeply emotional and challenging medical journey of Hawaiki. Jess opens up about the immense challenges her family has faced while navigating the complex medical landscape for her son, Hawaiki. From managing an overwhelming number of specialists and diagnostic tests to integrating life-sustaining medical equipment at home, Jess details the day-to-day realities that test their strength and resilience. She shares the harrowing experiences of emergency hospital visits and the critical decision-making processes they undergo for serious medical procedures.

Despite the constant fear and uncertainty, Jess discusses how they manage to maintain their spirits and the importance of emotional resilience in such trying times. Additionally, Jess introduces her new venture, Little Superheroes, a pioneering initiative aimed at providing innovative brain therapy for children with special needs, designed to enhance their lives beyond conventional treatments.

Key Takeaways:

1. Resilience in the Face of Uncertainty: Learn how Jess copes with the stress and uncertainty of severe medical diagnoses and treatments.
2. Importance of Advocacy: Understand the critical role of advocating for your child’s needs in complex medical situations.
3. Support Networks: Discover the value of a supportive community, including family, friends, and medical professionals.
4. Informed Decision Making: Jess emphasizes the importance of being well-informed about medical options and procedures.
5. Finding Gratitude: Despite the hardships, Jess shares how finding moments of gratitude helps her family cope.

Powerful Quotes from Jess:

• "It was so emotionally taxing not knowing like you're in this fight or flight, what is going on with my baby."
• "When you're watching your child go to sleep for surgery, you also don't know if they're coming back."
• "I wouldn't let them put him to sleep without me being there and I wouldn't let them put him to sleep without me singing to him so he could hear my voice."
• "I remember thinking, why is this happening? But then it came to me, we were the lucky ones because our little boy was still alive."
• "We've been thrown right in the deep end after your son has just had his first brain surgery."

To learn more about Maternal Grounding and to book Pregnancy Massage, Postpartum Massage, and Baby Massage, visit https://maternalgrounding.com.au/services/

Join our supportive community on Facebook: "Birth Trauma By Maternal Grounding" https://www.facebook.com/groups/1012299449213573

Connect with us on social media:

- Instagram: https://www.instagram.com/maternalgrounding/

- Instagram: https://www.instagram.com/littlesuperheroes_/

- Facebook: https://www.facebook.com/maternalgrounding

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6

For inquiries, guesting opportunities, or collaborations, reach out to us at hello@maternalgrounding.com.au

How can mothers use their skills and passions to support and showcase their children's dreams, especially when facing unique challenges?

In this heartfelt episode, Jess Ngaheu explores how mothers can leverage their skills and passions to support and showcase their children's dreams, even in the face of unique challenges. Our guest, Sophia Louisa Lee, is an award-winning screenwriter and single mother of a daughter with Mosaic Down Syndrome. Sophia shares her incredible journey of advocacy, creativity, and unwavering love, offering valuable insights and inspiration for all parents navigating similar paths.

Sophia Louisa Lee is an award-winning screenwriter and the proud mother of a 25-year-old daughter with Mosaic Down Syndrome. She has used her talents to create the documentary "Believing to Dream: Olivia's Journey," highlighting her daughter's passion for singing and her encounters with professional musicians. Sophia's story is a testament to the power of maternal love and determination, showcasing how she has turned her creative skills into a platform for her daughter's dreams.

Key Takeaways:

• Advocacy and Education: Sophia fought the education system to ensure her daughter could be mainstreamed, highlighting the importance of standing up for your child's rights.
• Harnessing Creativity: By creating a documentary and involving her daughter in artistic projects, Sophia shows how parents can use their talents to support and inspire their children.
• Overcoming Challenges: Sophia's journey illustrates the resilience required to navigate societal and personal challenges while maintaining a focus on her daughter's happiness and growth.
• Community and Support: The value of finding and creating supportive communities, both in person and online, to share experiences and resources with other parents facing similar challenges.

Quotes:
"I just thank God that every day I have the strength to just keep going. I try to see everything with grace and love."

"For anyone to tell you what is better for your child, my only response is, ‘No one knows your child more than you do.’"

"As a parent, you have to be engaged, you have to really be there. I think that really makes a difference."

"The more love you can give to yourself, the more love you'll give to your kid and your kid will grow. They will exceed expectations with just love."

Be sure to check out the links below to learn more about Sophia's work and connect with her inspiring journey.

https://www.instagram.com/sophialouisalee/
https://www.facebook.com/sophialouisalee/

To learn more about Maternal Grounding and to book Pregnancy Massage, Postpartum Massage, and Baby Massage, visit https://maternalgrounding.com.au/services/

Join our supportive community on Facebook: "Birth Trauma By Maternal Grounding" https://www.facebook.com/groups/1012299449213573

Connect with us on social media:

- Instagram: https://www.instagram.com/maternalgrounding/

- Instagram: https://www.instagram.com/littlesuperheroes_/

- Facebook: https://www.facebook.com/maternalgrounding

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6

For inquiries, guesting opportunities, or collaborations, reach out to us at hello@maternalgrounding.com.au

In this special episode of the Jess Ngaheu Show, we're joined by Julie Foge, a devoted mother and advocate from Anchorage, Alaska. Julie shares her deeply personal journey through the unexpected challenges of the NICU and the world of special needs parenting following the diagnosis of her daughter, Eliza, with Prader-Willi syndrome (PWS) in 2016. Dive into this heartfelt conversation as Julie discusses the impact of PWS on her family, the power of advocacy, and the profound lessons of motherhood.

Guest Bio:
Julie Foge is the proud mother of three incredible daughters: Amelia, Eliza, and Caroline. Her life took a dramatic turn when Eliza was born in 2016, landing first in the NICU and subsequently entering the special needs world with a rare chromosomal condition called Prader-Willi syndrome (PWS). This pivotal moment redefined Julie's life, leading her into roles of fierce advocacy, profound connections, and a deep appreciation for the challenges and triumphs of parenting. Julie, alongside her husband Derrick, is deeply committed to raising awareness about PWS and empowering other families navigating similar paths from their home in Anchorage, Alaska.

In This Episode, You’ll Learn:

• The initial challenges and emotional turmoil of NICU stays.
• Insights into Prader-Willi syndrome and its impact on family life.
• Strategies for coping with the demands of special needs parenting.
• The importance of community and support in navigating health challenges.
• Julie’s transformation into a passionate advocate for her daughter and others with similar conditions.

Quotes from the Episode:

• "The journey through the NICU and into special needs parenting is fraught with challenges, but it is also filled with moments of profound growth and connection."
• "Advocacy isn't just about speaking up; it's about connecting hearts and fostering understanding."

Resources Mentioned:

• Prader-Willi Syndrome Association
• https://incm.org/three-ways-leaders-can-help-families-in-medical-crisis/

Connect with Julie Foge:

https://www.instagram.com/juliefoge
https://www.leaningintolove.com/

To learn more about Maternal Grounding and to book Pregnancy Massage, Postpartum Massage, and Baby Massage, visit https://maternalgrounding.com.au/services/

Join our supportive community on Facebook: "Birth Trauma By Maternal Grounding" https://www.facebook.com/groups/1012299449213573

Connect with us on social media:

- Instagram: https://www.instagram.com/maternalgrounding/

- Instagram: https://www.instagram.com/littlesuperheroes_/

- Facebook: https://www.facebook.com/maternalgrounding

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6

For inquiries, guesting opportunities, or collaborations, reach out to us at hello@maternalgrounding.com.au

Are traditional medical approaches failing our neurodivergent and special needs children?

In this episode, Jess Ngaheu delves into the shortcomings of the traditional medical system for neurodivergent and special needs children. She highlights the complexity of multiple appointments, high costs, and the lack of communication between specialists. Jess shares insights on the importance of individualised care and the transformative power of brain plasticity, offering hope and practical solutions for parents navigating these challenges.

Key Takeaways:

Challenges of the Traditional Medical System:

• High costs and multiple specialist appointments.
• Lack of communication and coordination between different therapists.
• Limited focus on root causes, often leading to temporary solutions rather than long-term improvements.

Importance of Individualised Care:

• The need for a tailored approach considering each child's unique needs and history.
• The significance of comprehensive evaluations to understand the big picture.

Power of Brain Plasticity:

• The brain's ability to change and adapt through targeted therapies.
• Success stories of children making significant progress with individualised treatment plans.

Holistic Approaches to Treatment:

• Combining functional neurology, movement, massage, and other therapies.
• The importance of consistent, long-term work for sustainable improvement.
  
  

Chapters
00:00 - 00:19 - Introduction to the Episode
00:19 - 00:34 - Welcome and Overview
00:34 - 03:51 - Challenges in the Traditional Medical System
03:51 - 06:49 - Financial Burden and Communication Issues
06:49 - 08:04 - Power of Brain Plasticity and Success Stories
08:04 - 10:09 - Holistic Approaches to Treatment
10:09 - 12:01 - Individualised Care and Call to Action

Quotes
One-size-fits-all approach that is often seen in traditional medicine is not how it works, and it's definitely not how it works these days

The science of brain plasticity and the brain's ability to change and adapt is huge, but people don't often talk about it.

The fact that we can change the brain is absolutely true. I've seen it firsthand with my son.

We combine functional neurology, movement, massage, and many different aspects in one treatment.

Having regular treatment with us, we have sustainable improvement.

To learn more about Maternal Grounding and to book Pregnancy Massage, Postpartum Massage, and Baby Massage, visit https://maternalgrounding.com.au/services/

Join our supportive community on Facebook: "Birth Trauma By Maternal Grounding" https://www.facebook.com/groups/1012299449213573

Connect with us on social media:

- Instagram: https://www.instagram.com/maternalgrounding/

- Instagram: https://www.instagram.com/littlesuperheroes_/

- Facebook: https://www.facebook.com/maternalgrounding

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6

For inquiries, guesting opportunities, or collaborations, reach out to us at hello@maternalgrounding.com.au

Do you know what it takes to stand up against medical negligence, especially when it involves your child? In this moving episode of the Jess Ngaheu podcast, Jess shares her profound journey of advocating for her special needs son, Hawaiki, against medical negligence. She discusses the relentless challenges and emotional struggles of securing the proper care and uncovering the truth about her son’s medical condition. This episode is a powerful exploration of parental advocacy, trust in intuition, and the hurdles of navigating the healthcare system with a special needs child.

Key Takeaways:

1. Why Parental Advocacy is Non-Negotiable: Jess emphasises the critical role parents play in advocating for their child’s health, especially in complex medical situations.
2. How Difficult is it to Access Medical Records? Jess discusses her struggles in obtaining Hawaiki's medical records, highlighting systemic issues in healthcare communication.
3. What Happens When Diagnoses Go Wrong? The episode covers the initial misdiagnosis of Hawaiki's condition and the devastating impact of discovering the truth about his severe brain damage.
4. Importance of Legal Battles for Justice: Jess talks about the ongoing court case for medical negligence, showing the legal complexities when fighting for a child’s rights.
5. Trusting Your Gut: The story reinforces trusting one's intuition as a parent when it comes to the well-being of a child.

Chapters:

(01:17) Struggle for Medical Records: Challenges faced in obtaining Hawaiki's medical records and the importance of documentation.
(02:39) Diagnosis and Heartbreak: Initial diagnosis, the emotional impact of learning the truth about Hawaiki’s condition.
(07:41) Advocacy Beyond the Hospital: Experiences with Jetstar regarding accommodations for Hawaiki, demonstrating broader advocacy beyond medical settings.
(13:40) Hospital Challenges and Ryan’s Rule: Detailed experiences in the hospital, including invoking Ryan's Rule due to inadequate care.
(20:20) Facing the Truth and Ongoing Legal Battle: Discussing the lawsuit and the determination to fight for Hawaiki’s future.

Quotes:

• "If you feel there's something wrong, there definitely is something wrong. No one can ever tell you any different."
• "You are the greatest expert on your child, not a GP, not a doctor, not even someone that specialises in that field."
• "It is heart-wrenching finding out those details, but thank Christ, I'm fighting for him with this lawsuit."

To learn more about Maternal Grounding and to book Pregnancy Massage, Postpartum Massage, and Baby Massage, visit https://maternalgrounding.com.au/services/

Join our supportive community on Facebook: "Birth Trauma By Maternal Grounding" https://www.facebook.com/groups/1012299449213573

Connect with us on social media:

- Instagram: https://www.instagram.com/maternalgrounding/

- Instagram: https://www.instagram.com/littlesuperheroes_/

- Facebook: https://www.facebook.com/maternalgrounding

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6

For inquiries, guesting opportunities, or collaborations, reach out to us at hello@maternalgrounding.com.au

How does one balance a thriving business with raising two special needs children? In this episode, we explore the inspiring journey of Jessica Bailey, a devoted mother and the founder of Lending Solved. Jessica's son Charlie has a rare genetic condition and is hard of hearing, while her other son, Elliot, was born with spina bifida, hydrocephalus, and Chiari malformation, leading to many hospital stays. Her meticulous planning for Elliot's birth ensured effective communication and focused care.

Jessica's personal challenges have deeply influenced her professional life. As a mortgage broker, she passionately advocates for financial opportunities for families and the LGBTQIA+ community, helping them secure their dream homes and financial futures.

This episode isn't just about sharing experiences; it's about offering hope, strength, and inspiration to anyone facing similar challenges. Tune in and be moved by the courage and tenacity of those navigating life with special needs while building a business from the ground up.

Key takeaways:

• Jess's role as a mother to two special needs children
• The importance of discussing the challenges of parenting children with special needs
• How Jess's approach to her personal and professional life provides inspiration for others.
• The importance of creating an inclusive environment for individuals with special needs.
• Why self-care is important in maintaining emotional and mental health amidst life's challenges.

Chapters:

(00:00) - Advocacy and Resilience in Finance
(04:23) - Parenting Challenges and Support
(16:23) - Navigating a Spina Bifida Diagnosis
(29:47) - Birth and Disabilities
(39:29) - Balancing Business and Personal Commitments
(45:18) - Parenting a Child With Special Needs

Connect with Jessica Bailey

Instagram - https://www.instagram.com/lendingsolved/
Facebook - https://www.facebook.com/LendingSolved
Linked In - https://www.linkedin.com/company/lending-solved/

To learn more about Maternal Grounding and to book Pregnancy Massage, Postpartum Massage, and Baby Massage, visit https://maternalgrounding.com.au/services/

Join our supportive community on Facebook: "Birth Trauma By Maternal Grounding" https://www.facebook.com/groups/1012299449213573

Connect with us on social media:

- Instagram: https://www.instagram.com/maternalgrounding/

- Instagram: https://www.instagram.com/littlesuperheroes_/

- Facebook: https://www.facebook.com/maternalgrounding

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6

For inquiries, guesting opportunities, or collaborations, reach out to us at hello@maternalgrounding.com.au