“People judge before they stand back and think, you know, there might be another reason for, for a person behaving the way that they do.”

Peta Hooke interviews Helle about Pome disease and some of the everyday challenges Helle faces from getting dressed, to speaking to getting around.

Pompe disease is a rare, inherited, and without treatment, often fatal muscular disorder. Pompe Disease is caused by a deficiency or total lack of the enzyme acid alpha glucosidase. This enzyme is responsible for breaking down excess glycogen which normally accumulates in the muscles.

For more information about Pompe disease, please visit https://australianpompe.org.au/find-out-more/

If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.

The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It’s a space to share your experience and to empower and encourage more people to support invisible disabilities.

A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.

If you want to share your experience, get in touch with us by emailing us here.

If you enjoyed this podcast, please leave a rating and review.

Find out more about the Sunflower by visiting the website hdsunflower.com

Discover the vital role of the pituitary gland and its impact on our health with Gretchen Jordan, Associate Director of the Cushing Support and Research Foundation. Gretchen shares her compelling personal journey with Cushing's disease from diagnosis to advocacy. This episode uncovers the critical functions of cortisol and the often-overlooked symptoms of this rare condition, emphasising the need for greater awareness and early diagnosis.

Learn how non-specific symptoms like weight gain, high blood pressure, and emotional instability complicate the diagnosis of Cushing's disease. We discuss the importance of recognising these symptoms early to improve quality of life and reduce the risk of severe complications.


If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.

For support

• Cushing's Support and Research Foundation
• World Alliance of Pituitary Organisations
• The Pituitary Foundation UK

Hosted by Chantal Boyle and Lynn Smith, Hidden Disabilities Sunflower.

If you enjoyed this podcast, please leave a rating and review.

Find out more about the Sunflower by visiting the website hdsunflower.com

Music by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

“My brain is having to put in a lot of coping mechanisms to be able to just be in that space or in that place.”

Peta Hooke interviews Isabella about intersectionality in youth, disability and mental health. Isabella (Belle) identifies as a neurodivergent (autistic & ADHD) Greek (CALD) queer/asexual empath with binge eating disorder (BED), learning and psychosocial (permanent & ongoing anxiety & depression) disabilities.

Belle chats about challenges caused by general misunderstandings, and how the Sunflower can help. Belle is a passionate advocate and has a blog well worth subscribing to, https://www.divergents.info/publications.

Mental Health: If you’re going through a hard time right now, the Beyond Blue Support Service is available 24/7 for brief counselling. Call a counsellor on 1300 22 4636 or chat to a counsellor online here www.beyondblue.org.au

If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.

The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It’s a space to share your experience and to empower and encourage more people to support invisible disabilities.

A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.

If you want to share your experience, get in touch with us by emailing us here.

If you enjoyed this podcast, please leave a rating and review.

Find out more about the Sunflower by visiting the website hdsunflower.com