Mostrando títulos en Personas con Discapacidades

Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life - his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father - he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human.

This collection of autobiographical tales answers many readers' questions regarding the lives of those needing service dogs. What sorts of challenges do the legally blind face? How does one go about obtaining a guide dog? How can disabilities affect relationships? How does one cope with being diagnosed with a chronic and degenerative condition? Can an animal really become a dear friend? Not only are these stories engaging and heartwarming, but 100% of the profit from each purchase will be donated to Guide Dogs for the Blind in order to raise funds for those who need a canine companion. ...

Paige Layle was normal. She lived in the countryside with her mom, dad, and brother Graham. She went to school, hung out with friends, and all the while everything seemed so much harder than it needed to be. A break in routine threw off the whole day. If her teacher couldn't answer “why” in class, she dissolved into tears, unable to articulate her own confusion or explain her lack of control.

In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that paralyzes the entire body. Doctors gave him three years to live. He was thirty-four years old. As Steve says, he is now ten years past his expiration date. His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced.

Hiroshima was one of the great tragedies of WWII. But out of the devastation of the first atomic bomb, some survivors emerged, 25 courageous Japanese women who became part of a remarkable humanitarian epic. Victims of the atomic blast that ushered in the Nuclear Age, these women were brought to the United States in 1955, where they underwent reconstructive surgery to repair the ravages of the bomb. Schoolgirls when the bomb destroyed their futures, they began to remake their lives and re-create themselves. This is the compassionate, often bittersweet chronicle of the Hiroshima Maidens.

This intimate memoir reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of 35, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, she exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but - more importantly - as a thoroughly modern woman.

The first story Selma Blair Beitner ever heard about herself is that she was a mean, mean baby. With her mouth pulled in a perpetual snarl and a head so furry it had to be rubbed to make way for her forehead, Selma spent years living up to her terrible reputation: biting her sisters, lying spontaneously, getting drunk from Passover wine at the age of seven, and behaving dramatically so that she would be the center of attention. In a memoir that is as wildly funny as it is emotionally shattering, Blair tells the captivating story of growing up and finding her truth.

They all thought he was gone. But he was alive and trapped inside his own body for ten years. In January 1988 Martin Pistorius, aged 12, fell inexplicably sick. First, he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within 18 months, he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.

Friends and family expected Ken Cruickshank to continue playing sports, traveling, engaging in mischief, and raising an active brood after marrying his soulmate, Karen. Indeed, all proceeded to plan until an invisible enemy strengthened its grip on his body and mind. Goals, abilities, and many dreams grew forever affected by progressive disease. After an accident crumpled his weakened body, the author dug deep to rediscover the optimism and hope he'd once considered his essence. Ken realized that the illness he blamed for stealing his identity was also the path to wisdom and a life of ...

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

Blindness in the 1950s was a social stigma. Stephen's mother wanted a normal life for him, so he fought desperately to uphold the illusion of sight. For a child frantic to fit in, each day was an exhausting pretence. He managed to ride a bike, when even reading involved pressing his nose to the page and painfully forcing his eyes to concentrate. Head up, he strode through a carefully memorized labyrinth of streets, hoping to fool passers-by that he could actually see.

What is intimacy? More than sex, more than romantic love, the pieces in this stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. Explorations of caregiving, community, access, and friendship offer us alternative ways of thinking about the connections we form with others—a vital reimagining in an era when forced physical distance is at times a necessary norm.

Sabrina Greenlee was born to teenage parents in the shadow of South Carolina’s Clemson University, and her story unfolds against the backdrop of her challenging upbringing in a family that lacked the means—financial and emotional—to offer her and her two brothers the safety, comfort, and love every child deserves. When she was a teenager, her beloved younger brother, Dilly, died in a drunk driving accident. In her early twenties, Sabrina faced the tragic loss of her fiancé and one true love. A decade later, she was brutally and publicly assaulted, resulting in the loss of her vision.

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits, an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes, had earned him the label "social deviant". No guidance came from his mother or his father. It was no wonder he gravitated to machines, which could, at least, be counted on.

Jonathan Mooney blends anecdote, expertise, and memoir to present a new mode of thinking about how we live and learn - individually, uniquely, and with advantages and upshots to every type of brain and body. He explores the toll that being not normal takes on kids and adults when they’re trapped in environments that label them, shame them, and tell them, even in subtle ways, that they are the problem.

Jen Bricker was born without legs. Shocked and uncertain they could care for her, her biological parents gave her up for adoption. In her loving adoptive home, there was just one simple rule: never say "can't". And pretty soon there was nothing this small but mighty powerhouse set her sights on that she couldn't conquer: roller-skating, volleyball, power tumbling, and spinning from silk ribbons 30 feet in the air. Everything Is Possible is her incredible story.

Katherine and Jay Wolf were a young couple living the dream in Southern California, but all was nearly lost when Katherine suffered a shocking near-fatal brainstem stroke and struggled to find hope in a life that looked nothing like the one they had before.

Ido in Autismland opens a window into non-verbal autism through dozens of short, autobiographical essays each offering new insights into autism symptoms, effective and ineffective treatments, and the inner emotional life of a severely autistic boy. In his pithy essays, author Ido Kedar, a brilliant 16-year-old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.

First came the boom - the loud, deep, unapologetic bellow that seemed to erupt from the very core of the Earth. Eerily, the majestic high-rise slowly leaned to the south. On the 78th floor of the World Trade Center's north tower, no alarms sounded, and no one had information about what had happened at 8:46 a.m. on September 11, 2001. Blind since birth, Michael couldn't see a thing, but he could hear the sounds of shattering glass, falling debris, and terrified people flooding around him and his guide dog, Roselle.

Temple Grandin, Ph.D., is a gifted animal scientist who has designed one third of all the livestock-handling facilities in the United States. She also lectures widely on autism - because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us.