A Rare Purpose  By  cover art

A Rare Purpose

By: Jemma Caprioli
  • Summary

  • In rarity we unite, connect and find our way to purpose.
    © 2024 Jemma Caprioli
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Episodes
  • The Government Doesn't Care That Your Cancer Is Rare, With Cathy Slattery, Head of Patient Programs At Rare Cancers Australia.
    Jul 17 2024

    Imagine you are diagnosed with a cancer that's so uncommon that even your doctor is uncertain of the pathway you need to take. You are isolated in your illness and you turn to investigating yourself online. Is it right that because your cancer is rare, that you should receive less support? When you have a rare cancer the treatment options are often more complex, and alongside complexity comes expense.

    Rare Cancers Australia is a pillar of support for more than 40,000 Australians facing their own rare cancer experience right now. Cathy Slattery from Rare Cancers Australia talks openly about the challenges and differences that people with a rare or less common cancer encounter every day - from uncertainty in their health pathway, to the inequities in government support.

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    44 mins
  • When Cancer Affects More Than Just Your Body, with Michele Molnar, Founder of Cancer Chicks.
    Jun 6 2024

    A compelling and emotional episode that touches on the many challenges young women affected by Cancer go through. Joined by the founder of the not for profit Cancer Chicks, Michele Molnar. We have a candid conversation about relationships, emotional wellbeing, parenting, and grieving our body parts. Although Cancer can take a lot from you, Cancer Chicks is about finding community, your tribe, and a place of belonging so you can find meaning and friendships beyond your diagnosis.

    https://www.cancerchicks.org.au/

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    1 hr and 2 mins
  • A Cancer Discovery with Professor Parry Guilford: Clinical Trials, Research Funding and a Candid Chat about Hereditary Cancers
    May 30 2024

    Professor Parry Guilford is known for successfully in identifying the first known genetic mutations in the CDH1 gene, leading to the description of a new cancer syndrome Hereditary Diffuse Gastric Cancer (HDGC). This discovery has conservatively saved 27,000 people from developing a severe form of stomach cancer. Parry is determined to continue to change the course of HDGC stomach cancer patients outcomes, he is invested in the CDH1 mutation families and feels their trials as if they were his own. We discuss genetic counselling, the age at which we test our children for hereditary cancers, his work on lobular breast cancer, bowel cancer and funding research.

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    59 mins

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