• Myles Was Here To Teach Us

  • Jun 20 2024
  • Length: 32 mins
  • Podcast

Myles Was Here To Teach Us By cover art

Myles Was Here To Teach Us

Listen for free

View show details

  • Summary

  • Losing a child is heartbreaking. Ashley Genelin lost her son Myles when he was just 3 years old. He was diagnosed with cardiofasciocutaneous syndrome or CFC. They did their best to keep him at home as long as possible, even when caring for Myles was like running an ICU. Make-A-Wish allowed them to take this mini-ICU on the road so that Myles could enjoy being with their extended family and the great outdoors. The memories built in this medical camper still serve to connect the rest of the family with Myles.

    Ashley has leaned into all of this and now serves CFC community full-time. She was a member of the Board of CFC International and now is on staff. She hopes that sharing her story will make this easier for other families and will lead to changes in how the world manages rare syndromes like CFC.

    Mentioned in this episode:

    Invitation to Check Out The Atlas

    The Atlas

    Invitation to Check Out The Atlas

    The Atlas
    Show more Show less
activate_primeday_promo_in_buybox_DT

What listeners say about Myles Was Here To Teach Us

Average customer ratings

Reviews - Please select the tabs below to change the source of reviews.

Audible.com reviews

Amazon reviews
No Reviews are Available